Should I be gaining weight??
- 15 Oct 2013 by 1legmummy
- 4 November 2013
- thyroid suppression test, levothyroxine, weight, prescription, thyroid, nodule
I have a goitre and some nodules and have been prescribed levothyroxine to stop my thyroid working as a plan to shrink the goitre.
Even though I am at slimming world I have gained 13 lbs since March.
I take 150 daily and I am an amputee - I need to try to keep my weight stable.
I am so tempted to stop taking them but worried that my thyroid may not start working as it should.
I know this can cause weight loss as a side effect but this is not the case with me.
Any help or advice would be appreciated
Added 15 Oct 2013:
I was tested and the dr was happy my thyroid has stopped working
Now that you are Hypothyroid (you have a thyroid gland but it is not functioning). It can be a challenge to lose weight because your metabolism slows down and changes to your endocrine system occurs. That said it is possible to lose weight. In general follow the dietary advice for someone with Hypothyroidism as your condition is similar. May be slimming world has a diet plan for people with hypothyroidism. Please do not stop taking your Levothyroxine without consulting your Doctor first.
Hello Emma and I sure feel your frustration. Without knowing your medical history... it sure sounds like you need yet another opinion from an endocrinologist... if you are not satisfied with the results you are getting... and the doctor tells you something like your appetite must have increased is being insensitive to you as a patient with unique needs. Most of these endo doctors think the numbers being in range means the patient must be doing okay. Then why do so many patients feel so terrible... who report they feel bad... and are told to just wait and see. Oh yeah... and see you in 3 to 6 months. My husband works with a foundation in CT that is a not for profit. Dr. Broda Barnes was a pioneer in this field... and a lot of other doctors balked at his work. Doctors are scientists first and to me that means do your due diligence and prescribe based upon your research and evidence not just what the standard says it should be.
On that note... one of the books I read, "Thyroid Power... 10 Steps To Better Health" by Dr. Richard Shames, MD and his wife Karalee Shames, RN, PhD. These people have dedicated their lives to helping people and their patients get on the right track plus understanding what the symptoms mean. Sometimes doctors miss the disgnosis because of an inadequate patient history... or just treating symptoms without getting to the route cause thus stopping the symptoms from happening in the first place.
I know you are fighting with these symptoms and well you should be. It takes time to get the thyroid functioning properly and sometimes it needs help functioning. Can you get a hold of this book which is beyond cheap, if purchased online. I know another member here picked it up for a few dollars. Libraries carry this book as well. I like it because it is written for lay people plus has a section in the back of the book written for doctors. When I finished with this book, I got together my list of questions for my endo doctor... she was more than happy to go through it and answer my questions. I am proactive in my care and have lost some doctors because I don't take orders well and I like having my questions answered - not too much to ask, right? Some doctors think they are the authority and you are only there to take what they give you. I think they forget who pays their bills, too.
If you don't mind me asking, what dietary restrictions do you have, if any? Does your doctor know what type of goiter you have? Has anyone suggested iodine is at the bottom of this? Either lack of or too much of? I was on lithium once... this may have thrown my thyroid out of whack - permanently. I take a compounded version of armour thyroid now. This is the first time in my adult life that I have been able to loose weight and keep it off without craving anything. I mean... nothing. This journey started in my mid 50s and I am now pushing 60. It's about time I got control of me back. I lost 92 lbs. I know you are frustrated but with a different thyroid issue. I, too was on various forms of synthetic which made me sick and affected my liver. Lots of goiters go away on their own... yours is invasive and causing problems. The solution to your problem shouldn't cause other problems that your doctor shrugs off - weight gain. That is just insensitive. You must be feeling like you have more problems than working solutions. That is what we are here for. We are here for support and to help where we can. Sometimes the responses to questions posted get us to thinking about our issues in another light. If nothing else, I pray you remain hopeful, take courage from us to keep your journey moving in a positive direction. One thing is for sure... compassion overflows from this community.
Be safe, be well and may your path be guided by a higher power. We are also here to raise you up when you are down. I hope you will post more as you can...
Hello. I was wondering what your TSH has been reading with each blood test. The current range is .3 to 3.0. This is the target that most people feel best. Prior to that a doctor would say you were in range if under 8.0. My endocrinologist works with keeping me in that lower range and always asks me how I feel, how much energy I have and so forth. That is the sign of a good doctor. All the other numbers that make up the TSH reading are of components that can vary daily. They are used by a good Endo to look for trends. I stay at the very low range. That is where my energy and general well being is best. I have had no problem with appetite except when I am too tired. Then I prefer not to eat. You can have the doctor send you to a Dietician if your insurance pays, and find out what you need to change in your diet. That helped me considerably. I didn't have a weight problem, but all the sleeping is a place to put on weight. Just how it is.
The adjustment of thyroid meds is very slow. For you to monkey around with the dose will cost you even more time to get better. If you don't like your Endo then get another one. I changed docs and have a wonderful one now. Second opinion for your unique situation, (we are all different, right?) may be what you need. I do know that synthroid and levothyroxine produce different results for me.
Around here it takes a long time to see Endo so you might want to get that appointment right away. Patience is the key here. Cut out soda, sugar in coffee or whatever might be an empty calorie source for you. Increased appetite is sneaky and subtle because it happens ever so slowly with this. Perhaps there is something you can do while the time passes. Just a thought. I know you will be better and getting this worked out will help.
Finally, reducing the medication will make you tired, gain weight and sleepy. Not the results you want. Call the nurse, get your numbers and let us talk again, ok? Karen
Thanks EG for the note.
Hey Emma... I still have that one question. Did your doctor tell you what kind of goiter you have??? That is important for the standard of treatment... if you answered that question... I apologize; I must have missed it through all of the conversations here.
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