I have found a new off-label med that has greatly helped my migraines. Anyone else tried it?
- 6 Mar 2013 by sara12345
- 8 June 2015
- namenda, migraine, migraine prevention, pain management, constant pain
Or anyone else interested in it? It's called Namenda and is given to Alzheimers patients at a dose of 20 mg. But given off-label for migraines at 5 mg. has provided me significant help. I have been on the med for about a month. The Headache Specialist at a major university prescribed it for me and said that he had seen significant improvement in some people who had "central migraines" like mine. He said that it should work in just 2 weeks which it did.
As some of you may know, I've had severe migraines that are especially difficult to treat since they were caused by a major stroke. Hurray on this one!
Now I am in the process of increasing it to 10 mg since my Butrans patch is causing major skin irritation. So I really need to take something to take the place of it since it has kept me out of the ER.
Glad to hear you have found something that works and are guided by a specialist. I take a major drug off label as well. Thank goodness there are doctors who work outside the box. :-) Karen
Thanks for sharing the information, I'm sure that it'll help some people here who have migraines, just knowing that information. It's always good for people to share off-label uses for medications, because it can help some people a great deal, as off-label uses aren't commonly discussed (due to the laws regarding FDA approval and such). I know about Namenda (memantine) being used for chronic nerve pain, with some success, as well as it being used somewhat successfully for opioid tolerance and hyperalgesia, but I hadn't heard about it being used for migraines until just now. I've been wanting to try it for nerve pain, and to decrease the dose of my pain medications, but I have to email some stuff to my doctor for him to read it and make the decision.
I think that he would be willing to give it a try after reading all the research I've done on it, though. I'm very happy to hear that it works so well for you though! I know personally just how debilitating migraines can be! The last one I had led me to the ER because the pain was so bad that I literally was considering killing myself, because the Imitrex, pain medications, none of it was even putting a DENT on the pain and my pain level was literally at a 10!
Thank you Sara. Interesting information. Regards pledge
Nice to know the info. I have migraines too and I have so many side effects and interactions when I take a migraine meds. So now I'm back to just taking one Ibuprophen and one acetominophen. I'm not even supposed to be on the ibuprofen because it interacts with my Lithium. I try not to do it often.
Glad you found something that works for you!
Hi Sara, I'm THRILLED for you! This is the best news I've heard since the pig ate my brother! (Gran used to say that) I'm very happy for you!
I hope other 'central migraine' sufferers see your post about Namenda.
I had terrible rashes from the patch myself, but it helped quite a bit. I do hope you go slow when tapering off the patch, as you know, the withdrawals can be a bear.
Great news, my dear friend!!
Im so very happy for you! I understand how difficult things had been for you with your chronic migraines. Its wonderful that you have found something that at least gives you a measure of relief. I really hope it continues to do well for you! Thank you for sharing this information. It could help many of us with chronic migraines. I wish you much continued success!
I have had migranes since I was a child. I am now 60 yrs old. They have
gotten worse the older I get. I have been put on every med there is out there for prevention and to stop the migrane. I have had 3 or 4 MRI's and nothing
showed up. Namenda did not help me. Right now I have come off all my
preventatives and I have 9 Naratriptan 2.5 mg to last me a month. They work
if I catch it soon enough. I keep Dollar General brand migrane relief tablets
and sometimes I take up to 3 trying to get relief and sometimes 2 with a
hydrocodone, soma, and a 2.5 xanax and go to bed. Sometimes it is gone
when I wake up. For 2 and 1/2 yr headache everyday. I read where adderal
can help migranes. already ADD I went to a behavioral health doctor and she prescribed me the adderal and said there was a good chance for relief.
The first month on 10mg I felt somewhat better but I could still feel it. The 2nd month on 15mg 3 times a day I started feeling a lot better, the 3rd month on 15mg 4 times a day noticeable improvement.6th month It seems to have lost some of its effect. Started getting more frequent. It has been 10 months now. I still get them. I am in a better frame of mind and for the most part I can deal with them better when I do. But when the bad 3 day ones hit I get
very very low. I am probably at 20 days a month now with atleast 4 to 5 of those days really bad and in bed. The improvement is maybe 10 days a month pain free. Still afraid to plan a vacation or go far from home. But it
seems my brain is more alive and I can deal with the average migranes with a calmer state of mind. I have not been to the behavioral health dr in 6 months I lost my insurance but my primary care dr is prescribing them to me at this time. He will not change my dose. He wants me to go back to behavioral health. I am afraid to go up on my dose anymore. I have lost down to a size 4. I am still looking for some other kind of help. hoping & praying for a miracle. If I find an answer I will let you know. God Bless You All. I know the pain. Send me the miracle if you have it please and thank you.
sarah12345 the dollar general migrane relief is exactly what it says on the
bottle. it has 250mg of tylenol,250mg aspirin, & 65mg caffeine. A lot of times 2 will do the job. If is really bad I take 3. Behavioral health is a nice way of saying physcristists. But, really it is different from going for serious mental problems and conditions. They treat ADD, depression, anxiety,obsessive compulsive disorders that type of thing as well as migranes. By the way, I had a pretty good day today. I caught my migrane
in early stages and my afternoon and evening has been good. I still stand by
the adderral. It has changed my life.There is something I did not mention before. I was in a bad car accident and had to have neck surgury. fusion on 3 levels. My neck has never gotten over this and that was 10 years ago. Some of my migranes are brought on because of my neck. I have to be careful what I do. I lost my cleaning lady and tried doing it on my own for awhile, I actually like to clean, well afterward I would go into a 2 to 3 day stay in bed. I had my new cleaning lady start yesterday. She did a good job. No not everything was perfect but she did the things I should not be doing and a lot more. I am happy to have her. I think I will see a decrease in my migranes now. I will keep you informed.
I have tried topamax, inderal, namenda,clonazepam, mobic, nadolol, nortyptylene, midrin, valium, and many more i would remember if i saw the name. Topamax seemed to be helping but I started loosing my memory in a big way and my dr took me off immediately as well as the namenda. At this time I take magnesium 1000mg, B2 400mg, B12 1000mg for anemia, estradiol 1.25mg, vit E 400iu, xanax 2.5mg everytime i take the adderral 15mg 4 time a day or every 4 hrs, sometimes 3 or 3 1/2 hrs, hydrocodone and soma as needed for neck as well as migranes, and trazodone 100mg PM to get a good nights sleep. I thought about botox but a little scared. They are doing botox now to locate trigger points causing migraine and then disableing that nerve to stop migranes. Still new watching reviews. I have been reading up on stopping migranes using trigger points.
The neck, the hand, the head, the foot, and I have started trying some. the one on the shoulder just below the neck seems to help me. again it gives me some relief from my neck pain which inturn helps my head. I have been reading some about the budda meditation have not tried it yet. chiropractic did not work. have seen a lot of reviews on migraine patients getting altymizers disease. that really scares me. I can tell I do forget things more than I did now.
How long have you been getting the botox injections and how old are you?
how often do you get migranes after starting botox?
i am 60 as of 01/01/13. mine started at about 8 0r 9 yrs old. they got worse after my hysterectomy but still probably 5 or 6 a month & intensity was worse taking no meds for them at the time. they started decreasing in frequency maybe it was getting my hormones straightened out after the
surgery. but i still got them all along. lived in house with wood heater and i
think the smell of that wood may have bothered me some. had to stop using hairspray and perfume. would defintely set them off. moved to another house
without wood heat. they started tapering off again. I would almost alway get them after drinking alcolhol. really the clear rum was all i could drink and then occasionally i would get migrane. in 1990 i moved in with my fiance and he had wood burning fireplace. they started getting worse again but not horrible. got married and moved into a brand new house with no wood. they tapered off again briefly. then they started getting worse. everytime i would come in the house i would smell this red dirt smell. the builder did not put plastic on top of the dirt in the crawl space. i could not get my husband to do it. they continued to get worse and worse. then i had my auto accident. that definetly took a toll for the worse. started getting them 4 or 5 days out of seven. had my surgery 2 yrs later and then immediately moved. did a little better. there is no wood heater. there is some dampness in the basement but no water stands. maybe that hurts me. in 2009 my husband got laid off from his job. my daughter and family lives next door. her husband got laid off also. we went in together and started a remodeling company. did not do well. her husband finally got another job. during this time i did not know my daughter had turned to drugs. my son in law took them from her and she totally lost it. went raving crazy. the two young children had come to our house and we were going to take them to eat and she came over and got them cussing me out. i was looking out my kitchen window watching her walk home and she shot me the bird and said i hope your head hurts. it didn't that day or the next 3 or 4 days. then it hit and i had the headache everyday thereafter until after starting the adderral. that is crazy. huh. it probablly has nothing to do with it but it is so strange.we had no relationsip for 2 yrs & more. really we are now just starting to begin to get back what we lost. it still feels a little strained. i know she loves me and she knows i love her but she said a lot of other horrible things to me and about me to my grandchildren. time heals but sometimes it takes a long time. there is no rushing it. it has to take its course. i have cried many tears over this. sorry i did not intend to write a book. i hope you get better. i am so sorry for your situation. i did pray for you this AM. i hope you have a great day.
yes, that is true until my neck was injured and set them off.
Both the pain clinic and my internal medicine doctor do not think it is possible that Namenda caused what is now diagnosed as Trigeminal Nerve pain, so I am back on the Namenda.
Thanks for sharing the information. As most people have said, this could work for some people. Of course, everyone is different and everyone handles medicine differently.
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