i was told there is nothing to do about it. Its just like serosis of the liver. I would just like to know more about it and you can live healthy with it for a long time right?.
It all depends on the genome type and how far it has advanced. mine is type 3 and the first thing to do if you do, is stop drinking. I'm 4 yrs sober, get second opinions, I've been told I had a year before I needed treatment to the last one who says my body can't tolerate treatment and I need a transplant. so don't always believe the first doc you talk to
I start treatment in November. First I had to get a blood test to show which one I had (there are 3 hep c strains in US)then I had a liver biopsy to see how much damage. Now, since I had the most aggressive kind (the most common) I have to give myself inferon(radiation) treatments once a week, plus take two prescriptions 8 pills and 6 a day!! Now, it sounds scary but the good news is it is like 86% or more effective if found early. This is the only treatment right now. I found out 5 years ago so it's no rush just watch your levels and no drinking or drugs!!! When your levels start to go up it's time... Good luck and God bless!!!
Hi lindzloo2889 - I also have cirrhosis. I would get a second opinion if you are being told there is nothing they can do for you.. I have stage 4 -- cirrhosis yet I just completed treatment for 48 weeks. So far the virus is undetectable.. Hopefully, it will remain this way!
I had the virus for over 20 years before I found out I had hep C. I found out quite by accident -- as most of us do! I do advise you not to drink or do drugs.. If not, they will not put you on treatment.
I found about 12 years ago that I have hepatitis C. I had been going to my family doctor every year for an annual check up for many years, but they had never checked to see if I had Hep C!
My husband had gotten an annual check up at that time (because he had just received health insurance after not having had it for many years), so I went to my doctor and told him I wanted to be tested. Sure enough, I was diagnosed at that time with Hep C. The funny thing was that my husband and I have two different genotypes (I have genotype 1a & he has type 2b, so we did not pass it from one to the other.)
We both had liver biopsies, and it turned out that his Hep C had progressed farther than mine, so he was placed on interferon and ribavirin treatment for six months.
NOTE: If you have type 2b, you only had to be on treatment for 6 months, whereas if you have type 1a, you had to go on treatment for one full year. (There are many genotypes of hepatitis C, up to something like 6g, or even higher than that.) This was about 8 or 9 years ago, and things have changed since then! These days, they will test you every few months while you're on Interferon treatment and, if the medicine is not working, they will stop treatment so you don't have to go through the whole year. In my husband's case, he had to quit treatment after 4 months (rather than 6 months) because it was very hard on him and he couldn't hold down his job while on treatment. His boss told him that if he didn't get off of treatment and start performing his job duties, he would be fired . Not everyone has such a bad reaction to the medication.
Your doctor was quite possibly wrong to tell you that there is no hope to treat you for Hep C! Doctors are still learning about hepatitis C, and they don't know everything.
My husband has been free of the virus ever since he underwent treatment, so many doctors believe that it IS possible to cure it -- at least for a long period time, if not permanently.
We have both stopped all drinking and unnecessary prescription drug use. (We may have a glass of red wine with dinner on a special occasion, and my doctor said that's okay.)
In my case, because my liver damage was minimal, I go to see a gastroenterologist once a year and they give me blood tests and a sonogram to see how my liver is doing. I also had a second liver biopsy this past year, because they usually will give you a liver biopsy every 10 years to see how your liver is doing. This time, the biopsy showed that I have a little bit more damage to my liver than I had the first time 10 years ago.
My doctor told me that within a few years there may be even better treatments available, and he gave me the choice of whether I wanted to go on treatment now or wait for something better. I chose to wait and see, and I have to go back to the doctor later this year or early next year (I forget when it will have been a year:). At that time, my doctor's going to give me a sonogram and take more blood to see how high my viral load is.
I have had the disease for at least 35 years. My husband has had the disease for at least 40 to 45 years. So, you can see that it does not necessarily make a difference how soon they catch it. My husband and I were both feeling physically better than we had in our entire lives at the time that we were diagnosed!
I hope this gives you some reason to be more optimistic! I've heard it said many times that more people will die with hepatitis C then will die from it! They don't know how many people are out there who are carrying the hepatitis C virus but don't even know it! It can only be transferred through blood to blood contact. Tattoos are said to be a possible way to exchange blood through the needle used, and they also say that you could get it through manicures or pedicures if they manicurist was to cut your skin and you bleed and then they use that utensil on the next person that comes in without sterilizing it first.
Now if you have cirrhosis of the liver, that is much more serious. It is possible that rather than trying to treat you with interferon, they would want to give you a liver transplant instead. You MUST stop drinking and doing drugs (unless they are prescribed and necessary), or they will not put you on the list for a liver transplant.
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