This is the first site I have found that offers a scleroderma support group. I am in an advanced stage and could really use some help. I live in upstate New York, and there are no groups that are local. Thanks.
I am new to SS and there is much I need to learn from those of you feel who so inclined to share experiences and wisdom. I am 65 as of last month and feel very fortunate to have had great health throughout my life until now. If for no other purpose, I'm happy to be part of a support group.
In answer to your question, let me know how I can help...
Hi my name is Angie and I was diagnosed with systemic sclerosis 2 yrs. ago. I felt like I was on a different planet and my life was never going to be right again. There have been many struggles with little rest inbetween. A little more stabalized recently and started therapy to help me cope better. I also got a great bunch of friends from joining scleroderma groups through Facebook. They are always there for support and to answer questions. So I hope we can talk sometime my number is 5743151961. Be well.
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