This is the first site I have found that offers a scleroderma support group. I am in an advanced stage and could really use some help. I live in upstate New York, and there are no groups that are local. Thanks.
I am new to SS and there is much I need to learn from those of you feel who so inclined to share experiences and wisdom. I am 65 as of last month and feel very fortunate to have had great health throughout my life until now. If for no other purpose, I'm happy to be part of a support group.
In answer to your question, let me know how I can help...
Hi my name is Angie and I was diagnosed with systemic sclerosis 2 yrs. ago. I felt like I was on a different planet and my life was never going to be right again. There have been many struggles with little rest inbetween. A little more stabalized recently and started therapy to help me cope better. I also got a great bunch of friends from joining scleroderma groups through Facebook. They are always there for support and to answer questions. So I hope we can talk sometime my number is 5743151961. Be well.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Do you know of anyone who has scleroderma and dermatomyositis who is on the medication mycophenolate
Posted 21 Sep 2009 • 3 answers
Posted 7 Dec 2009 • 1 answer
Posted 4 Feb 2010 • 1 answer
Posted 21 May 2010 • 1 answer
Posted 23 Jan 2016 • 1 answer