... like to know if the body pain goes away at some point. It's getting a bit unbearable
I had feet and hand pain from the first infusion. Now it is throughout my whole body. It is quite unbearable and I am taking pain pills already for something else. Just found out that the entyvio is working great according to my recent colonoscopy. But darn,,, the pain. How do we weigh the benefits with so much other freakish pain. To me the pain just seems to get a bit worse as time goes on. Like I said at first it was just in my feet and hands when I woke up in morning. Now the pain wakes me in my sleep. Feels better when you move. But if you lay down for just a bit and try and stand, my feet are screaming at me. I will be on it for a year in June. Why so many complications for one big stupid disease. Ugh Is your pain all over MaryLee57
Hi, I responded to a question you asked a year ago. I wanted to say that it turns out I have neuropathy pain throughout whole body!!! You might want to see a neurologist for this as well. Still not 100% certain that pain is from Entyvio. Happened around same time as I had just finished some other drugs that are known now to cause neuropathy pain. The neurologist I saw said once you get neuropathy, it's not something that will go away, even if you stopped the Entyvio. Please let me know if you were told something different. Because the pain is awful. Best wishes to you
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