I've had chronic pain for many years. I used to have a pain management Dr. that helped me with great pain relief but he left the state and for the last 7 years I've not had regular pain meds. For the last year and a half, my new pain management Dr has been trying different pain meds, doses and combinations. After some time, he put me on Percocet 10/325 3 x's per day. I had an MS flare and he prescribed Oxy without tylenol 4 x's per day instead for one month. I found that without the 'kick' of Tylenol it didn't work as well. He then went back to Percocet 10/325 3 x's per day. Long story shorter, I got good pain relief for an hour or so but really suffered with intense pain for until it was time for my next dose. Last month, he put me on Nucynta ER 50 mgs twice a day plus two Percocet 10/325 per day. It didn't work very well at all so he increased my Nucynta to 100 mgs two times per day, along with the Percocet 10/325 2x's per day. I had some left over Percocet and would take a 3rd (middle of the day) Percocet-which helped a bit. I spoke to my Dr and he agreed that I could take the 3rd middle of the day Percocet-until I see him back in 28 days. He told me that normally he does not prescribe any Percocet (or other) when he prescribes Nucynta but he was willing to make an exception for me (he knows and understands that I have several very painful medical issues). He told me that when I return in 28 days, he will continue to prescribe the Nucynta 100mg 2x's per day along with 2 of the regular Percocet but that is as far as he will go. I am not getting the pain relief that I need with what I am taking now and to go back to not taking the 3rd Percocet per day-terrifies me. I see from others here that they are prescribed much higher doses of Nucynta along with 'break through' higher doses of hydrocodone or oxycodone etc. My Dr is not willing to prescribe anything stronger. I firmly believe that I deserve to receive better pain management for my pain-like others do for what seems like, in some cases, to be less pain issues then I have. (I know of people whose elbow is arthritic and they get 30mgs Roxi's 4 times a day. I feel I am undermedicated. It sucks!). I guess I am simply venting as I don't see an alternative as it is EXTREMELY difficult to find a Dr that is willing to treat chronic pain where I live (because of the high rate of abuser's in this state). I am thankful I found this pain management Dr! Help?
I take Nucynta er 100mg twice a day, with regular immediate release Nucynta 50mg twice per day as needed and this works well for me. Perhaps he would be willing to let you have regular Nucynta for breakthrough? There's no rule saying a breakthrough med has to be different from your extended release med. Nucynta can be rx'ed up to 500mg per day for the extended release or 600mg per day for immediate release
I'm so sorry you're going through this... It sounds horrible! It makes me grateful to have had the Pain Management Doctor back in 2007 because as soon as they saw nothing was helping me they put me on the Fentanyl Patch which lasts 72 hours and it worked immediately. Once in a while, I did have to take an Oxycodone 5mg for break through pain when needed and a muscle relaxer.
I will say that after 10 years of just the patch and Oxycodone, etc, I finally made the decision to give the Boston Stimulator a try on my back and it works wonderful. I had two surgeries in my back which damaged my nerves, 2 knee replacements, messed up left shoulder, arthritis and much more so to get some good pain release is important to me.
I have stopped using the Oxycodones and now the doctor gave me the Nucynta 75 mg once daily and my patch is down to a 50 mcg from a 100 mcg.
Unfortunately, when I moved to Tampa, FL I had to find a doctor who would prescribe the Fentanyl Patch 100 mcg because not every doctor does and I'm again so grateful I was guided to an amazing Pain Management Doctor who not only prescribes my medications but who is also concern about my whole health in general and is becoming more and more a wonderful friend who really listens to all my needs.
He also prescribes me a Compound that is out of this world... I went to the Doctors Health Grader website and did my research. I also prefer Doctors from over seas. I will be praying about your health and that you will find a good doctor who will really help you in your situation and will not just pump you with narcotics that are not working, Amen!
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