My problem started in the fall of 2011, I began with constant nausea and vomiting , and severe abdominal pain.After finally finding a GI doctor and a good primary doctor, I went thru every GI test there is all normal. Both doctors suspected adhesions on my omentum. Well in Jan of 2013 I had a hysterectomy, the dr's notes stated it took 30 minutes cutting away adhesions before she could do her surgery with the I robot .This furthered my doctors belief. My pain is in my upper stomach region, wrapping around each side. It is constant. In the past 9 months the pain and nausea have gotten so bad I have lost 51 pounds. I was overweight to begin with, but if I continue to lose weight at the rate of 2-3lbs a week, it won't be long before it will become a medical issue. My weight right now is 201lbs. I am 5'6 tall. The problem I'm having is I live in a small Texas rual town, and we are having trouble finding a surgon who will go in laparoscopicly, or exploratory.The closest city is San Antonio Texas, but I don't know where to start looking. My only insurance is Medicare. I am only 40 yrs old. The only abdominal surgery I have had was my appendix age 13, a c-section age33.Back in 2004 I had panceritis, which was treated in the hospital for a few days. Every surgon I have gone to so far doesn't want to touch me, and I don't know why? All my medical records are provided, I make the appointments on time, fully pay my bill. HELP
It is hard to find a surgeon to do exploratory surgery, especially with Medicare. It is sad, but true. Since all of your GI testing has come back normal, I suspect that you might have inflammation of your intercostal nerves. I say this because the pain wraps around both sides. That is, unless you are having muscle spasms, or shingles without the eruptions. I had ribs removed for cancer and for years was in horrible pain afterwards. No surgeon would touch me. I finally contacted Dellon Institute and made an appointment. I'm not promoting them, but am telling you what I did. They operated and reconstructed the rib area, removing neuromas, cysts, bone splinters, etc. The institute has offices in Las Vegas and Baltimore. First, I would ask to see a neurologist to see if your issue is neural. Hope this helps.
Hello. I also suggest a trip to Mayo Clinic. They specialize in the unusual. The real problem with exploratory is the diagnosis for billing. If they don't have one by finding something definitive, they won't get approval for payment. It has nothing to do with your conscientious bill paying.
Your state has a listing of surgeons and reports regarding their success rates, those of surgeries, of actions against them that have been raised. All kinds of things. Because the licensing board is so complete, you will be able to narrow down your choices. You might want to think outside the box and go where the experts are. So sorry you must suffer until then.
I too develop adhesions, those fibrous attachments. They do mess things up. I assume you have received all kinds of lab tests as well as the scope? CT scan, ultrasound? High WBC or cancer markers? You have time. With your height you can lose quite a bit more weight at that rate. However, this consistency should alarm your physicians. You can ask your doctors where to go as well. They have lots of connections with other clinics and specialists. It also lets them know you want answers. That can be motivating. doctors don't mind referring to other doctors. It can help both of you.
Wish I had more for you. Let us know what you are trying next. Karen
I agree. You need to go to a large regional, or teaching hospital, such as Johns Hopkins in Baltimore, MD. That's where cases which are unusual are more the norm. I know you will have to travel, but going to a really big hospital raises your chances of getting help. Take care - EJ23
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