Been on the Lemtrada since July 2016. I haven't felt good since I started it I go for bloodwork every month .and there are certain levels on the blood tests that are so low. Way to low. And still not rising. But nobody will tell me anything because the drug manufacturer is paying for all the bloodwork. Just so confused and frustrated. I'm just another disgusted M.S. patient
I'm sorry you are feeling so bad and thinking negatively.
You are not "another disgusting MS patient" !!!
You have been given a diagnosis that affects all parts of your lifestyle.
It does not take away your ability to love and be productive. Even if you accomplish one task per day it is still being productive.
You should have access to your records. Transparency is a fairly new objective in health care and that includes having the ability to keep a copy of your records.
If they still give you a hard time, tell them you want them for your primary.
Just out of curiosity how much education did they give you? It's a clinical trial. Right?
Did they give you a first round consisting of 5 days? A year later the second round consisting of 3 days ?
Do you feel the MS is better controlled?
Do you have chronic fatigue also?
It's what I have along with Fibro. The CFS is the most difficult to deal with.
Please feel free to private IM me if there is something you want to talk about.
Negatibve thinking has no positive benefits. Each night while trying to sleep, think of one thing that you are grateful for. I read it helps people sleep better and wake up in a positive mood to start a new day.
Hello my name is Ashley and I have been on the trailer for two years now and I have to say it's life-changing in the beginning yes it could be frustrating you feel icky and you must feel like it's not working but you have to push yourself. I went from unable to talk walk or write to living some what normal now. What are you symptoms?
- Lemtrada Information for Consumers
- Lemtrada Information for Healthcare Professionals (includes dosage details)
- Side Effects of Lemtrada (detailed)
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