I recentlly began to dig for cures and relief from this unbearable pain. When one thing led to another I end on a Shingles page. OMG!!! I have so many of the symptoms, in fact just now got done doing a test on the Shingles and on allergies I got almost 100% on the shingles, I have never even discussed with any doctors, nor thought about. But. The burning and small little blisters and face pain the whole bit, If I have been miss diagnosed Im fuming. I asked last month if my doctor thought I had something other then this fibro, as I get so exhausted that I nearly fall walking, I am listless at times during the day thinking I may be forming a type of sleep disorder. I literally fall asleep during a phone chat or even standing when Im in a flare. The nerve endings that hurt and the tears for the last three weeks have been so bad that I have had huge bad thoughts, and prayed(which Im now at 52) learning may be the ticket. I found another thing besides a pain noone has a reason for. This my friends may be something to think No one thinks this is recurring Shingles I mean, yet most suffers write the same as me for one damn week I feel good in sometimes two months, I am at least happy that there is or could be another alternative, I have suffered food given migraines that floored me since Birth , and until 7 to 8 years ago didnt even have a clue it was caused this way, pain my whole life and yet noone can tell me until oral surgery when top ramen became my diet, I was almost dead from MSG... So happyness until I can get a test. wish me luck as there is still hope that before my day comes Im to have a damn unpainful month except basic controlable arthritis... and that I can finally paly a whole day with all my grand kids, Gawd he must exist... as for the rest of my fellow pain sufferers please dont rule anything out because the doctor says, I am constantly looking as many of you. I heard my grandma had this when thinking hereditary??? My dads mom too had this every month when I was growing up I just never thought two times about it being the things wrong, good luck to us all, and I hope next week I have an update to this, I will find a doctor to test me for this if I have to go to ER to do it... many hugs to all. Lori
What can I say besides I am so very sorry if you've been misdiagnosed!
You are so right, we should all get second and third opinions/
I hope this horrible puzzle of yours gets put together and the docs figure out what is causing this horrific pain.
Please keep us updated ?
Fibromyalgia doesn't present as shingles, which is a painful blistering type of thing. Usually you only get shingles if you had chickenpox as a child.If you are having this on your face, you need to be careful because of your eyes. The pain of shingles is horrible, & they usually use Lyrica or gabapentin for the pain. You also mention problems of you stomach with MSG etc... Have you ever had food allergies tests? This could eliminate a lot of yor problems even the breaking out in itching painful blister type rashes.Fibromyalgia is a totally differnt disease with pain around each & every joint & also you have these trigger points in other places in your body One place is in your tummy. I have had injections for them & they really help. Lyrica & pain meds also help my fibromyalgia. I think what you need is a new doctor from the sounds of it. Make an appt. with with an allergist for allergy testing especially foods. Explain all your problems, & then make an appt. with a rheumatologist for the fibro. I think this will help solve a lot of your problems...
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