You may know it as Postural hypotension, dizziness upon standing. I have suffered with bouts of dizziness for a few years; however over the past seven months it has become more frequent. My dizziness associated with Fibromyalgia (FM) is very distinctive. Visually objects are at a tilted angle, some seem closer then what they actually are, whilst others further away. With Orthostatic Intolerance (OI) I get the typical spinning room effect. I went to curetogether (thank you bruthd for telling me about this link) and OI was listed as a symptom of FM. Does anyone else experience this?
Yes Emeraldgirl I also suffer with OI & Fibromyalgia. I had symptoms of both for years-starting in my mid teens-but it took a few years & a few Dr's before I was given a solid diagnosis. 1st the Fibro then the OI. My Oi was very mild 16yrs ago but has definitely progressed with time. Also if Im having a fibro flare up then I usually notice a significant increase of OI just as stress is a big trigger for both conditions for me. Its funny what we can learn to live with isn't it? When sharing what the OI dizziness & altered perspective looks & feels like with my husband & kids they all were amazed & found some humor in it but they were mainly disturbed @ what they perceived as a huge safety issue. Theyre concerned I'll have a nasty fall & hurt myself severely. The thing is that you become accustom to the dizziness/warped perception & learn to adjust where its needed. This is my normal no matter how abnormal it may seem to others lol.
Ppl sometimes forget that. I know I've managed this far as obviously you have as well & Im sure we'll keep on living just as well as we always have despite these conditions that persist in inconveniencing our daily lives. It is good to know someone else in the world understands :-)
One more thing I just remembered then I'll end this mini novel I've written you before you suffer eye damage lol. When the dizziness increased,especially if it was a sudden substantial increase, did your Dr check your blood pressure? I've got high blood pressure & before I began meds I was dealing with constant dizzy spells. Blood pressure meds actually reduced the dizzy spells by almost half. The episodes were so similar I never noticed a difference. Its worth checking out. I hope you find this helpful. Nice talking with you EmeraldGirl!
Hello Trinabell and welcome to DC
Well I thought as I have not seen you around I will start with your profile, which is very good by the way. I was about to cry in places and laugh in others. Yes humour is all around us my brothers and I exploited this fact as children. Spent all our time laughing at everything. I should write my own profile at some point!
I went shopping today. I only went up the road and in the car. Very dizzy today. Very dizzy indeed I began to feel sick. However with this type of dizziness, when I stand up it is your typical spinning room type. My altered perception type happens when I lose my balance, or staggering around as if I am drunk. I know I need to get my BP checked and my blood checked also as I am prone to anaemia. The reason why I don’t think it is anaemia is because other classic symptoms are absent. I find it difficult to go to the GP as sitting is not my strongest suit. That said I have just thought of this now I can see the nurse instead. I will make an appointment tomorrow. How was your OI diagnosed? Don’t worry I am a wordy writer too. Your book a day I find rather interesting. I use to work with two man who read a book a day. Maybe you could try becoming a writer, you certainly know how to tell a story! The other interesting thing is that this OI question had loads of response and now they have all gone! Why, I don’t know will contact DC and find out what happened! Any way I look forward our next encounter.
Take care EG
Hello Trinabel you’ve changed lol
You must have had server balance problems and dizziness. I have only blacked once from anaemia. My balance problems arrive from sitting to standing or if I am trying to push my body beyond its capability. I am aware that OI and CFS do go together but I read that many people with Fibromyalgia (FM) also have it, hence why I posted the question. Lots of people with FM responded who seem to have the symptoms but where putting it down to other causes. I was too then I stumbled across OI and that is when I stated to consider this as a possibility. What you said makes sense in that FM makes everything worse because this is what it does. So maybe it is the chronic myofascial pain (CMP) or a low BP is the culprit and FM make it worse. This is an interesting proposal. OI is relatively easy to diagnoses I was just waiting for my rheumatology appointment in November. In the interim I will get a lying and standing BP done. The weird table that your doctor made you lay on is called a tilt table. Most GP’s in the UK don’t have these! I live in the UK and your GP is assigned 10 minutes per patient. So frequently they go over this time. I will address my situation privately, not because I am ashamed you can look at my previous questions which does cover what happened but it gives you an opportunity to see how the private question thing works. Plus anyone looking For OI just want to read about OI. I will see you on the private side!
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