... a bomb in my lap!
Will she now get Fibro also??? Did I pass this awful affliction on to my own child? I can't stop crying. I know what she will have to go through the rest of her life, and it's breaking my heart. What can I do to help her with this. When it's me... I deal.. by my own child... it's killing me right now, and I need to be there for her. Please help...
Fibromyalgia - My daughter is 31, she was just diagnosed yesterday with SLE, I feel like she dropped
- 19 Jan 2010 by midwestma
- 28 Jan 2010
- fibromyalgia, systemic lupus erythematosus
... a bomb in my lap!
Mom, I hope you do not mind me calling you mom. Do not cry... I would cry if you knew she was systematic and no one knew what was wrong. Praise, that you know and now she can take care of it. Do not point your finger when it comes to who gave it to her. It really does not matter who gave it to her, she has it. Be proactive in her treatment.
I say this because my mom died of Breast Cancer and I found out I had cells turning to cancer in both breasts. Do I blame my mom.. No way. My uncle on my father's side died of Cancer.. My father's mom had cancer in her shoulder. No cancer on my mom's side except my mom. I look at it this way, life is like a deck of cards, sometimes we pull a few jokers.
Be strong, and I will have you and you daughter in my prayers.
What causes lupus? Is it hereditary?
The precise reason for the abnormal autoimmunity that causes lupus is not known. Inherited genes, viruses, ultraviolet light, and certain medications may all play some role.
Genetic factors increase the tendency of developing autoimmune diseases, and autoimmune diseases such as lupus, rheumatoid arthritis, and autoimmune thyroid disorders are more common among relatives of patients with lupus than the general population. Some scientists believe that the immune system in lupus is more easily stimulated by external factors like viruses or ultraviolet light. Sometimes, symptoms of lupus can be precipitated or aggravated by only a brief period of sun exposure.
It also is known that some women with SLE can experience worsening of their symptoms prior to their menstrual periods. This phenomenon, together with the female predominance of SLE, suggest that female hormones play an important role in the expression of SLE. This hormonal relationship is an active area of ongoing study by scientists.
More recently, research has demonstrated evidence that a key enzyme's failure to dispose of dying cells may contribute the development of SLE. The enzyme, DNase1, normally eliminates what is called "garbage DNA" and other cellular debris by chopping them into tiny fragments for easier disposal. Researchers turned off the DNase1 gene in mice. The mice appeared healthy at birth, but after six to eight months, the majority of mice without DNase1 showed signs of SLE. Thus, a genetic mutation in a gene that could disrupt the body's cellular waste disposal may be involved in the initiation of SLE.
Hi 'Mom,' :)
I am one of those daughters who has SLE and fibro. You know what helps me and often keeps me going? Well, first of all my faith, and then a really wonderful, loving relationship I have with my mom... like it sounds like you have with your daughter. But I also understand you want to hear more than that right now.
It is not a given that your daughter will develop fibro, and it is also not uncommon either. At some point in time I read that the numbers were about 25% of Lupus patients have fibro or the other way around. To be real honest, for the longest time I couldn't distinguish between the two. I would talk to my mom about my ailments and we would wonder, "Is that the Lupus or the Fibro." If I find my fibro is acting up there are things I can do to try and make it better, and some drugs are helpful with sleep/pain. But it's the lupus that you have to keep watch for. Get regular blood work done. Encourage her to take her meds - even if she is going through what appears to be a stage of remission.
Now, fibromyalgia is now walk in the park. I feel as though I am afflicted more by it than my Lupus. I am fortunate to have to major organs involved from SLE at this point. I was diagnosed w/both in 2000.
I can't tell you how as a mom to bear this burden, but I can tel you this: I would so much rather experience this than watch my mom struggle with it. Although, I am the only single on out of 4 children, so I cry when I think about who will take care of mom and dad when they need it. I was going to do that and don't know that I will ever be able to handle it. But, I don't need to go their in my mind right now.
What does help me is having my mom as my best friend. She never complains when she gets my scripts or takes me to appointments. She calls daily to check on me. She is absolutely precious... sacrificial, selfess. I am so glad that I don't always have to depend on her (I also have meniere's disease - an inner ear/vertigo disorder).
Let it soak in and you'll be okay. Be strong. You can do this together!! Let me know how she is doing. Is her Lupus advanced? What are they doing for her?
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