Hi, I was diagnosed with fibromyalgia in March, I was discharged from rheumatology with a large prescription of gabopentin, these did not help at all and I gained about a stone in weight. following a referal to the pain clinic I have been on amitriptylin for a couple of months, I am very lethargic, and my skin is very itchy constantly however I never seem to be able to locate the itch. I am getting really fed up as I am no closer to being able to return to work and still never have a pain free day, has anyone any suggestions about something that will help and wont put me in zombie land as the health professionals have not really been of much help. I have attended one session of acupuncture and although totally spaced out for the rest of the day it did seem to ease the pain, but not completely eradicate it.
I can totally relate to you. I have had fibromyalgia for 11 yrs now... it started when I was 40. I have tried all kinds of meds for fibro. Drs have not been much help either. I went to a rheumatologist recently,and all he did was say "oh I know for sure you have fibromyalgia. I knew that for a fact already he just told me to take hot baths... he sure wasn't much help. I had to travel to another city to see him and it was a waste of time and money.
I am currently on amitriptyline. My doctor gave me 30 tabs of 10 mg tabs.
He told me to increase them by 10 every 3 days until I reached a dose that I felt my best on. I am on 30mg... low doses of amitriptyline are good for pain management.If I took 40 mg I felt light headed... major fibro fog.
So I went back down to 30 mg... it works best for me,but everyone is different.
I think you should lower your dose so you don't feel so lethargic... but do it slowly.
Sometimes the pain is bareable... other times its unbarable. On those days I take Tylenol 3 for pain... I try not to take them unless the pain is so bad.
You have to accept that you have fibro... it wasn't easy for me in the begining but i've come to terms with it.
When you do that it makes it somewhat easier.
All the best to you... I hope what i've written helps you.
Let me know how your doing.
i recently got diagnosed with fibro. i havent been to the pain dr yet since my diagnosis a few weeks ago. idk what treatment he is going to try on me. he did mention lyrica if i was diagnosed with it. i have been on lorcet 10s for a year for my lower back pain. it def helps with the fibro for me personally. when i take them, i am pain free (at least for a little while). im hoping he doesnt take me off of the lorcets because thats the only thing that has helped me get off the couch and make it thru the day at work. im def scared of the possibility of addiction, but i'd rather be pain free any day. some dr's do opiate therapy along with other meds to control fibro pain. at least thats what i read on some sites as i was doing my research. i hope you find something that will help you. we just have to come to terms that we are gonna live with this for the rest of our lives.
im 25yrs old with 2 kids that i can barely play with. its sooooo hard to get out of bed in the mornings. it hurts so bad. maybe they will find the real cause and cure it one day before we die! i wish you the best on your journey to relief. i feel ur pain... xoxo
I have had Fibromyalgia for many many years. I was finally diagnosed in 2002. I have been on every medicine there is... Nothing helped much. I went to a pain management doctor, tried more medicines and a nerve blocker though that didn't help either. He put me on methadone and it was like taking a sugar pill. I stayed on it about a year, finally I got tired of taking that strong of a medication without any relief in my pain. I stopped cold turkey and had severe withdrawal. Afterwards I was put on Soma, and demerol for the worse days. That helped the most with the least side effects for me. Then recently the Soma stopped working for me. I am now on Tizanidine. I have only just started this medicine, and have the demerol for the worse days, which I don't use often, 40 pills in 6 months. I can say on the Tizanidine I don't have so much tension, my headaches are gone and finally I can sleep the whole night through without waking up.
That in it's self helps me feel rested. This may not help you but, then again it may. Everyone reacts different to medications. Good luck in your treatment.
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