... on a ton of pain control meds, anti spasmodics, muscle relaxents,zoloft, and sleeping pills. i also suffer from horrible nightmares and medical mj seems to be the only thing that stops the nightmares, but i am worried about the neuropathy. i can only feel part of one foot, and now my hyands are getting so weak i cant even grip tightly i am always dropping things! help!
Please do not get desperate it will only make things worse for you.
My loving mother suffers from Fibromyalgia and MS... so I understand you very well... you are going through hell... I take care of her as muchas I am able to (I am male 41 yeras old and also suffer from many let´s say "conditions"), she takes Lyrica for the Fibro, she falls all the time, a couple of months ago , she fell and borke her nose... so you are not the only one... she also drops stuff, but she never loses her faith and her calm... she is also weak, it is part of the illnes and you have to come to terms with it, we both know what Fibro does to the body, it is chronic..there is no cure up to date.
You are allergic to neurontin, ask your Doctor about LYRICA.
What Is Lyrica? Lyrica is made by Pfizer, Inc.
Lyrica (pregabalin) is a prescription medication used to treat the following conditions:
Fibromyalgia -- Lyrica helps relieve the pain associated with this condition
Nerve pain -- It is approved to treat the chronic nerve pain that occurs after an outbreak of shingles (known medically as postherpetic neuralgia) or due to diabetes (known medically as diabetic neuropathy).
Epilepsy -- The drug is approved for use along with other seizure medications to treat a certain type of seizure called partial seizures
The International Association for the Study of Pain defines neuropathic pain as "pain initiated or caused by a primary lesion or dysfunction of the nervous system". The clinical features of neuropathic pain are the presence of stimuli-independent pain accompanied by allodynia and paresthesias6. These are precisely the features of pain in FM. FM is a stimulus-independent pain state because there is no underlying structural damage, and inflammatory signs are conspicuously absent. Most patients with FM have paresthesias, as demonstrated in the original study that led to the American College of Rheumatology criteria showing that more than 80% of patients with FM had such sensory alteration.
A more restrictive definition has been proposed that suggests neuropathic
pain should be diagnosed only when there is evidence of nervous system damage. Nevertheless, the clinical importance of neuropathic pain resides, not in the nerve lesion itself, but in the resulting nerve dysfunction. There are other clinical syndromes classified as neuropathic pain in which no nervous system damage is obvious (e.g., trigeminal neuralgia or reflex sympathetic dystrophy). Another argument for considering FM a neuropathic pain syndrome comes from reports of central nervous system sensitization. Patients with FM have abnormal temporal summation of pain12 and abnormal spinal cord reflexes. Central sensitization is expression of neuroplasticity and is the major cause of hypersensitivity to pain after injury.
I hope I have been of some help... just from a caring individual.
With Fibro most of people are on some kind of pain med, Muscle relaser, Sleep med and so times depressents. So this part is normal for us. As far as nightmares then only happened to me when I had reaction to one of my meds. Neuropathy is also a problem but one time I thought I had it because My feet and hands were going numb but doctor said no.. so make sure this is what you have. The weakness in your hands is normal to I also have this problem but when My pain was undercontrol more it got better. If I can help with any other question just let me know. I hope this helps ... I understand what you are going though.
I'm sorry that you have to go through all this discomfort and pain.
I would hope you know the drugs are causing your nightmares, I have them to from taking Morphine and also I take Gabapentin for my neuropathy. I have Diabetes and have nerve damage going on. The Gabapentin work very well for pain.
I wish you Gods speed in finding a good medicine for your discomfort and I know he's the one that can fix it.
I imagine you feel like your living a nightmare but as maso4169 said there are new meds coming on all the time to treat Fibro. For a long time most doctors didn't believe there was such a illness so we have come a long way.
It sounds to me like there must be a disconect between you and the group treating you. Are you being seen in a pain clinic setting? Is there one Doctor that is responsible for making sure you are not being over medicaded? You have a lot of meds in your bag (don't get me wrong please, if you saw my daily box of pills you would be shocked!) but there are some nasty interactions that go on.If you are not being seen in a pain clinic please get a referral for one in your area. If you are then hopefully there are other docs in the group or clinics in your area and you should ask to switch.
One thing I found to be of great help is to write down what I wanted to say to my Doctor befoe the appointment and give it to him at the beginning of your appointment. Don't say anything other than "I always forget to get into this so please take 2 or 5 or 15 mins to read this and then we can talk". It really does work for me when I am having trouble communicating with my doc.
How long have you been on this group of meds? Almost everyone has to switch their anti deppressant med because although they may get good results at first before to long you find yourself slipping back into a depressive state. Anyone suffering thru what you are is probably depressed. Again there are a ton of new drugs for that as well. A lot of people that I run into feel that Cymbalta works very well.
All I can offer is a suggestion that whoever is treating you does not understand what you are going thru and if it were me I would be asking around my town who the best clinics for treating Fibro are. These clinics range from pill mills that I swear get paid by the number of scripts they write to some clinics that have an agenda of getting you off all narcotics but they fail to inform you of that ahead of time. My point being is that it is up to you to advocate for the best treatment possible depending on your situation and do not settle for anything less.
Good luck you are in my prayers
You came to the right place, I cannot take neurontin due to allergies, same with the Lyrica, however I take other medications that help to keep it under some control. I have no feeling what so ever in my right foot (drop foot), as a result of many spinal fusions. Fibromyalgia is really unpredictable, I'm always dropping things, recently fell and fractured my forearm, and Coccyx (tailbone), I am in so much pain, I wouldn't even know where to start.
One thing about the neurontin I can say, and this is second hand, my husband takes it for his Cerebellar Ataxia, he also has complained about terrible nightmares, weakness he also falls easily because of the Ataxia, it messes up your balance something awful, we both use four pronged canes even when walking in the house to help prevent such falls,it is hard to use a cane going up and down stairs though, which is probably why I fell, having said that, he has been on it now for over two months or so, and is happy he rode out the some of the side effects, the numbness and tingling in his feet and hands is getting under better control also. I hope you can find your "happy medium", which is not easy to do, however, give it some time to build up in your blood system. Since you cannot take this medication whatever meds your doctor decides to try, give it some time...
I wish you much luck with this, I know so well how difficult this can be, come back often, there are many seasoned posters here with super advice, Always keep your doctor up to date on any and all reactions too, so that he/she is aware of what is going on at all times. They can then determine whether you need to increase your dosage or try another medication entirely. Bless You and try to have a good day. "Positive" thinking brings on more positive results, sounds trite maybe, but I don't mean to sound that way, I just know it works for me.
You certainly don't have to answer this, but what pain meds are you prescribed? I've been on certain ones that produced very vivid night terrors. They are worse than nightmares. As others suggested, be your own best advocate. Give it time for certain medications to work. I know it's hard to be patient when you're in such pain. But if you ever feel overwhelmed, you can always come here for emotional and spiritual support!
My best wishes,
In my humble opinion, every diabetic neuropathy, neuralgia and shingles and any nerve damaged individual should think beyond the oral and add capsaicin a.k.a [oleoresin] capsicum to their arsenal of pain relief. It is awesome. I prefer roll-on and patches. There is some in Lakota products, and rub a535, also in solution with methyl salicylate and menthol in one J.R.Watkins Apothecary Analgesic Balm (since 1868), and there is also one called Sloan's liniment which has been around since the 1800's. All these combine well with peppermint and other analgesic essential oils.
Also, of immense benefit is NeuraGen and NeuraGel by Origin BioMed.
It contains among other things, as I remember, a patented proprietary blend of oils from 3 flowering plants: Bergamot Oil, Geranium Oil, Lavender Oil and 2 trees: the tallest tree in the world, Eucalyptus Oil (very cheap to buy on it's own anywhere from pharmacies, department stores or grocery stores) and last but not least the magnificent Tea Tree Oil.
This product literally saved my life. It was developed by doctors.
It quiets the strange pain sensations that would creep up my calf via sural nerve through my knee and into sciatic in thigh and back right to spine.
Neuropathy sufferers know what I am talking about.
These guys also have several books about the subject and even one about dietary supplements that can help repair nerves in the long term.
The oil type solutions can be sprayed on and/or rubbed on as large an area as you can afford to spare the stuff. And the NeuraGel is a cream-like gel. Trust me, it really works, so spare no expense, you won't believe the difference it will make in your life, instead of making your poor liver and kidneys constantly have to detoxify your body of the chemicals in pills.
Your whole outlook will do a 180 I swear!
I've had one fool doctor sceptically make a blanket statement that all topicals are probably just giving relief because of the act of rubbing the affected area but that is total B.S. because it works when you spray these things on and don't even touch the area. I set that doctor straight pretty quick! For me, every single one of these natural plant derived remedies exceeded relief from topical 6% lidocaine, 20 % benzocaine plus 4% tetracaine all together (collectively known as tridocaine). Also, the major ingredient in many topicals from good old rub a535 and (ben gay too, I think) is methyl salicylate, which only differs by a couple of molecules from acetylsalicylic acid also known as A.S.A. or good old trusty aspirin, but without the possible stomach upset and upper gastrointestinal complications. Come to think of it, another N.S.A.I.D., diclofenac gel (Voltaren brand for example) is o.k. too.
O.K., I just wanted to state, that I am unsure about which of these remedies, if any, will alleviate the numbness factor for the person who posed the question. My problems are pain only, in fact I had a nerve ablated or destroyed by radio surgery (supposed to be more precise than cryosurgery, or freezing) to alleviate some pain. It is still a lot better almost a year later, for that one nerve, sural (outside edge of foot) if anyone is curious. It is still semi-numb.
I'd say read the Origin BioMed website to see if their products can help with numbness. And definitely get all their latest books about neuropathy. Capsaicin/Oleoresin Capsicum *may* help numbness too. It also works for shingles/herpes zoraster virus (i.e. Zostrix brand; very expensive). I'm hardly a neurologist, just had an accident 4 years ago that has forced me to do so much research. I didn't even take biology in high school. :)
Wish I could help more! Hope your extremities come back to life soon, tell your doc you want at least simple blood tests and whatever you can to ensure you are not over taxing kidneys and over toxifying your liver, since not only are the pills introducing chemicals, but toxicity could be a cause of your polyneuropathy. Did anyone even bother to explore what could be the possible cause[s] of your condition? Were there any tests offered, such as electromyography or nerve conduction velocity tests? The latter, from memory, is a measure of how fast the nerve in question is conduction or transmitting the electrical signals that make up all sensations in your nervous system. DEMAND MORE TESTS, DON'T LET THEM JUST THROW PILLS AT THE PROBLEM.
Methadone is a narcotic that really helps with nerve pain when taken in low dosages for pain. The other Narcotics generally don't help very much with the fibromyalgia like the methadone does, but do make the pain more tolerable. The Lyrica at a dosage that actually killed the pain just made me sick, and the Tramadol just wasn't strong enough, but did help a bit. 20mg of Methadone also wasn't enough, but almost, so my doc felt that it was safer to augment it with 300mg of Tramadol, 225mg of Lyrica (just can't handle anything over 300mgs). As far as the Neuropathy, I don't know much about it, but sincerely wish the best for you - Good luck!!!
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