I've recently been in excruciating pain in all my joints & I've been tested for numerous things that may be causing it... however, my mother told me (right after I saw a rheumatologist 3 days ago). That my grandmother had fibromyalgia. What are some of the signs or symptoms that someone w/fibromyalgia may exhibit??? This is really wearing on me & I am worried I could be misdiagnosed or simply be tossed aside if my doctor and the rheumatologist decide to give up on trying to diagnose me because at this point my symptoms seem erratic: exhaustion, horrible pain in all my joints, body temperature spiking suddenly then dropping just as quickly a little while later, muscles are hurting & I can't contribute the muscle pain and tension to anything... There are other symptoms but I'm feeling so overwhelmed with all of this that i can only think of a few symptoms right now. Sorry if this is too long or confusing, but I truly appreciate your help everyone!
Your rheumatologist would be the one to diagnose fibro. However I don't think that's your problem. We don't have fevers and most of our pain is in our muscles. There are 18 specific tender points and you must have 11 of them. With wide spread pain throughout our body for at least 3 mos. Exhaustion is a symptom but its also a symptom of many things. It is a syndrome so there are many symptoms, and we don't all have all of them. Let me give you what I have, besides the pain and exhaustion. Dry mucus membranes, ridged nails, overgrowth of cuticles, IBS, burning pain between my shoulder blades, that I have learned many of us have, the desire to sit after standing for a short time, even if we aren't in pain, the almost inability to stand in the shower for the same reason. I don't have any joint pain. I do get something that mimics carpal tunnel syndrome. These are things I've identified as being part of fibro after hanging out on sites with fibro patients and comparing things, and with my research. I started 60 yrs ago with a deep ache in my lower legs after I went to bed. This is all I had for many years, as far as pain, then the back pain started, along with rib cage pain. Now I don't have anywhere that doesn't hurt at some point. I have a pain of the week. A place that hurts more then the other places for that week, then it will change. The wide spread pain started about 25 yrs ago. Of course that original leg pain still continues. The pain is burning, stabbing, aching, throbbing, depending on the time and the place that hurts. All lab work for diseases that can cause pain have always been negative of course. Then there is the fibro fog, we can't forget that. There is the thing we have too that can be most disconcerting, we can be driving along and suddenly not know where we are or where we were going for a few minutes. Many of us suffer from depression and have sleep disturbances too. I know there is more I'm forgetting. I'll be back if I think of more.
Have you been tested for lyme disease?
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