Can I really have so many different diagnoses and it be correct? I keep thinking it must be symptom s of something else and do tests, but when do I stop?!
Fibromyalgia, CFS, Peripheral Neuropathy, Severe Neck and Shoulder Pain AND Asthma?
- 11 Nov 2016 by yoginistephanie
- 13 November 2016
- asthma, peripheral neuropathy, pain, fibromyalgia, neck pain, chronic fatigue syndrome (cfs), chronic pain, chronic, neuropathic pain, symptom, pressure, diagnosis, shoulder, neck
I think what you are lacking is someone who can put together the big picture.
I see a weakness in this area with the system.
The Primaries are busy trying to put a bow on the package to meet the ICDM code under which they bill.
Each ICDM is a diagnosis. Each diagnosis needs to be addressed with a treatment plan.
What they are not doing (or getting paid for) is thinking!
They send people to specialists. Specialist diagnose based on their specialty. They don't look into the asthma for example.
It's the Primary who needs to be educated and informed on asthma being related to those diagnoses that their specialists are giving them. This is how syndromes are discovered.
I think your closest chance of success is the Rheumatologist. They seem to be more in tune to the Invisible Illnesses.
The next is to go to an Internist over a Family Practice doctor. They have more advanced certification and usually just do adults.
If you are living close to a place like Mayo Clinic or Cleveland Clinic, they take the guess work off your back. They will keep sending you to whatever specialist until they get an answer.
This is a big generalization but I found it to be true. I was busy going to all the different specialist but, in hindsight, it was the Primary who should have been on her toes.
In the meantime,especially when pain is involved, you look las if you are doctor shopping.
I see where you have two problems :
- Severe neck and shoulder pain ( did you have an MRI on your spine?) which can be associated with fibro and CFS which goes along with peripheral neuropathy.
Best wishes. I hope you are getting proper treatment to alleviate the pain. You need to be treated as the big picture.
For therapeutic response, usually 6-12x the normal omegas from fish oils may be suggested by a doctor (in my case) or other medical practictioner.
I really like this option as it's so good for the body overall too. I switched to straight oil from the giant capsules and though gross, it's fresher and so more potent.
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