I am so fatigued... I have flare ups 4 days a week. It has ruined my life, I cannot make plans because I don't know when I am going to feel good or have energy until that day comes. I am 43 female, single mom of a beautiful 5 yr old daughter who worries about me. I also have a bad back with numerous problems, osteoartritis , and other problems. But my big one is fibro , I have been dealing with it for 5 yrs and I still don't know what to do about this fatigue. Anyone have any answers???
I've been dealing with it for more then 40 yrs. There is nothing specific you can do. Not a pill to take for it. Some people are on provigil or a drug like that, however I've never tried it I could never afford it. Get plenty of rest,take a multivite, and coq10. I don't make many plans, because I never know when I feel up to things, but for the most part, the things I have to go out for are done because I'm just too darn stubborn to let it get me. My mornings are lost. It takes me too long to get moving. I have found that getting plenty of fresh air makes me feel better.
I can totally relate to the fatigue and pain with FMS/back problems. I have been on Adderall for many years for ADHD--I was prescribed it before I acquired any immune & chronic pain problems--but I have tried Ritalin in the past (I looked up your Adhd med, and it appears the main ingredient is equal to Ritalin) and it made me feel like almost robot or zombie-like; I felt TOO calm in a sense. I felt my emotions, passions, motivation and creativity were blunted as well as a lot of my energy after some time on it. Perhaps a different Rx might be better or more helpful for you. While certainly no cure, a switch (or mild adjunct) of stimulant could be really helpful. For instance, Adderall has been incredibly helpful for me whereas Ritalin very obviously was not. My Mom has FMS too & cannot tolerate Adderall, but is currently on Nuvigil with significantly positive results for her fatigue.
I would definitely talk with your doctor about some new options--a trial of a different ADHD med or adjunct to your current stimulant, perhaps. Your doctor may have some other ideas as well, but it would be a start! And really, what harm can it do to at least talk to the doc? Best of luck!!
I've both the fibro and osteoarthritis and found that phentermine (Adipex) helps with the fatigue and stretches out the effects of my pain med. I'm lucky that my Dr. will rx this for me. I'm only a little over weight maybe 10-12 lbs and don't want to be any heavier. A little cushion is good in the elderly( I don't see myself that way) but over 65 is I guess. Or is 65 the new 45 but you feel 105. Adipex curbs your appetite which helps to keep the extra weight off the joints. You do have to go every month as it's one of those "nasty" controlled substances. Bad enough to feel awful then have to drag yourself out to get your meds. Especially bad in the winter. Sorry for your pain and fatigue at your age. Mine started much later in life. I also get facet joint injections for my arthritic spine. I bet your little girl even at 5 is a big help when you don't feel good. Just keep trying all sorts of things and you may stumble up on the right combo of meds and treatments that help. Good luck to you and your little girl.
So sorry for your pain and fatigue. Unfortunately, because it is so difficult with fibromyalgia, but the best treatment for fibromyalgia is exercise. That doesn't mean to dive in to it, but to start slow and evenly. Right now I'm suffering from toxic effects from a medical procedure that has severely weakened all of my muscles. I can barely hobble around the house and have to be in bed a lot of the time. This is when my fibromyalgia has been the worst--most likely from no exercise at all. :(
The expert in fibromyalgia said to do more than you feel like on bad days, and do NOT do more on the days that you feel good. It will just make your bad days longer and worse. Wish you better days.
Hi, Faith ...
I'll echo the sentiments of others who feel for your struggle with fibro. I've never had fibro and others are certainly in a much better position to comment on that problem.
However, you also mentioned a problem with high blood pressure ... that is something I'm very familiar with. I've had borderline to high BP for many years. I've resisted going on statins due to the many side effects I hear. My endocrinologist (diabetes) is always after me to lower my BP/cholesterol. I've been on diuretics for years and really don't think they've done anything for me. My last reading a couple months ago was 178/90 ... too high.
So I read about what natural products I could use ... something few MD are going to know or tell you about. I came across very impressive reviews on policosanol .. a natural herb that comes from sugar cane. I bought a few bottles of 20mg and take one a day ... it's cheap! I got it at Swanson.
And the results? WOWSER!!! I got a reading today and I was 124/70. I haven't been that low for as long as I can remember. Before you rush out and buy it ... check it out as best you can to see if it interferes with other meds. I've been taking it for about 40 days.
I don't know if this info is helpful to you ... hopefully it may also be helpful to others reading this thread.
I've had Fibro for 25 years and have found the best thing for fatigue is making sure you get enough good deep sleep. There are a few meds that increase deep sleep such as Trazodone and Flexeril. Ask your doctor about sleep meds that don't interfere with REM sleep..I also have found exercise is helpful in a light to moderate amount, it seems counterintuitive but it helps when done carefully, built up slowly, and not overdone.
I have fibro and fatigue is the hardest part for me to deal with. Yes it keeps you from planning ahead, and doing lots of things that you want and need to do. When I told my doc that fatigue was super hard for me he said that pain causes fatigue. The body works hard "dealing" with the pain and uses a lot of your energy.
As far as recommending solutions, I am still trying to work this out after over 30 years. Right now I am having acupuncture treatments that hopefully will relieve the pain, and then relieve the fatigue.
I am super sensitive to standard western medicine medications, and have tried many and ended up feeling worse than before.
My current fatigue-buster is a supplement by Irwin Naturals, "Oolong & Matcha tea EGCG Calorie-buring Diet". That is the full name. (I have no interest in this product). Each capsule has 50mg of natural caffeine. I take one with breakfast and one with dinner. The recommended dose is 3, one with each meal, but I only eat 2 meals. Even though I don't get a real kick from each one, I am more energetic and it doesn't interrupt my sleep. Oh, and it also is reducing my appetite.
My mornings are also spent waiting for some relief, but now I can get up and get going sooner. The 50mg certainly doesn't eliminate the morning stuff, just shortens it.
I'm curious about your flare-ups 4 days and week. Can you link that with any of your activities? My flare-ups have never been on a schedule. They just happen.
I m a 43 y.o. male with fms. I have been dealing with profound fatigue and irregular sleep patterns. I just started a new med regiment for all my ailments, physical and mental. Exercise is good for mind and body. I don't over exert or under exert. I make plans and if I have to break them, I do. I don't feel guilty anymore about it. Yoga, tai chi and stretching helped me in the past. I have had 2 cervical spine and one lumbar spine fusions. The last surgery was 7 months ago and I have had a constant flare up ever since. It use to flare up a few days a week but now it has become constant. The best thing I find is to suit up and show up to life. Helping others and volunteering at a nursing home, hospital or something helps to forget about my suffering. I can leave the FM behind for a moment. Its priceless even for just a second. I had a lot of self pity issues at first but a support group suggested I try to serve others worse off. Crazy, I thought. But with nothing to lose I tried it. Damn, it worked.
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