The FDA is having a public meeting about need for specific meds. They want comments on how fibro has effected us. fda.gov/ForIndustry/UserFees/PrescriptionDrugUserFee/ucm363203
Hello KM - Thank you for this information and the link. One can submit a comment if they cannot attend. Although I live in another country I will submit a comment as I am on a drug (Flupirtine) which going through FDA approval for use in Fibromyalgia. I hope that many of us participate.
Thanks KM, I'll try to find the link, too. I'm so very surprised that the FDA gives a rats patootie about us! Hate to sound jaded, but this is very late in coming, should have been ten or fifteen years ago. (just my opinion) But I should be grateful that the gov cares about we fibro sufferers at all.
P.S. Hi everyone, I've missed you all!
Just learning how to use this site..FMS has a time line .text book reality.IBS. fainting. Vomiting. Weakness. Chronic fatigue then chronic pain. Im insulted with phych doctors "its in our heads"why are there clusters in geo data. Could it be a virus not yet found under a microscope?
I was diagnosed with fibromyalga about 3 years ago never had anything to really help with excruciating pain Many of the doctors i saw took what i said so lightly i was quite suicidal for years in pretty much affected every part of my life sitting standing walking the pain was so severe i thought i would pass out just too much to deal with i was inconsistent with therapy because it simply was making me worse so much medication and to no avail just didnt work still dont work
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