Fibro/MS and attacking the symptoms!?
- 5 Jan 2012 by Jillynnie
- 11 January 2012
- multiple sclerosis, fibromyalgia
Just an update as promised. I met my neurologist (seems SO much more interested in my care than my previous one). She ordered an MRI of the brain to rule out MS. Will have it done Mon or Tues next week. Told me I don't present with MS physically and also due to my age (just turned 50 a few days ago) thinks it will come back 'clean'. :)
She said I DO present classic Fibro. Since I have not had any luck with current meds, once we are sure we have ruled out MS we will then attack the Fibro, trying the last med that I have yet to try... Lyrica. Will go from there.
I have a massage appointment at 3pm (bought 2 one hour massages for $25 on Groupon) and am looking forward to it. I am fatigued (as always) but, I had a massage in November and felt better the next day than I had in years!
I read on another person's post where Mary mentioned the memory foam bed. I am with her and sometimes need help getting up out of bed at the moment. My husband purchased a Tempurpedic bed for my surgery last year and I have to say that I can't imagine how much worse I would be feeling right now without it. SO glad. Bed is my friend.
Not trying to beat a dead horse, just posting as I said I would and thanking each of my dear friends here for your continued support, encouragement and prayers! I am looking forward to answers and implementing solutions so I can once again have the energy (mental and physical) to be on the helping end of this site soon.
Bless you all,
I am so happy to hear you have a neurologist that is caring and concerned for making sure you have the correct diagnosis and medication. You are so fortunate. Said a prayer for you and keep us all posted!
Hi Jilly I am praying that the m.r.i. Is clear and that you start to get some relief,massage is sooooo good for all of us and stretching can be helpful sometimes,keep me posted... u r always in my prayers,love,criss
Hi Sweet Jilly,
Well I typed a really long response to you a couple of hours ago and hit the wrong button on my 'smart' phone and lost the whole thing. So this is round two. *smile* I am glad to hear that you may be getting some answers soon and that you've found a doctor that's willing to get to the bottom of what's going on. That's half the battle. Sometimes the not knowing is as bad as the problem.
I am in total agreement with you about the bed. My hubby and I bought a Tempurpedic bed after I had my second cervical anterior fusion. It has been a lifesaver for me. I had someone tell me that they have problems turning over in theirs but I absolutely LOVE mine!! When we go on trips and I sleep on a traditional bed I wake up in MUCH more pain than normal. Anyway sweetie I will keep you in my prayers as always.
Much love and big Texas hugs -Terri-
I'm just praying it's not MS... and I'm sure it's not!! I went through the exact same thing and mine was all fibro.
Fibro can mimic MS, as you well know.
Good to know about the bed, thank you!!
Hi Jilly! Hope your tests come back fine which I believe they will. The ANA usually checks for all autoimmune like MS, Lupus etc... so you should know all about you when you go back. Fibro is a bitch to say the least & can cause so many symtoms one can imagine lots of things wrong with themselves. don't feel all alone. The Lyrica works great for me, but had to lower the dose becuse of blurry vision. I just take one a day right onw. I am on my way to see pain doc in about 15 minutes so will update you on what he (or nurse practioner) says Take care,
Hi Jilliynnie. Its Tuesday,(Jan.10th) not certain if you had that scan yesterday or having it done today. Hopeing it was all negtive and that would be great or at least good news. Bye bye then, oh pots on, so do have a cuppa, take care friend (notice I'm late in my response huh) ... really pledge, is that news?
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