Hi all so i went last weds to a pain management place and to my surprise they did nothing for me except refer me back to my PCP. They agreed that i have fibro and arthritis and that im in rough shape ... but still did nothing except give me papers to read and a list of groups to join. I am at my wits end here . My quality of life gets worse i feel like by the month and my children are so sick of my issues laying me up. I feel like all these Doctors ive seen (Nuerology , Rhuematology , two PCP's and a pain managment DR.) are all playing ping pong with me . The pain management Dr said she had a few meds in mind to recommend to my PCP Savella and Lyrica but that she wanted to her to treat me . My PCP sent me to This Pain management place because she said she didn't know a great deal about fibro or the meds and she wanted them to follow me. I am in pure dismay. I have never felt more alone . My pain is out of control and NO ONE is hearing me. Can any one on here give me any advice ? I am losing patience .P.S i have already done diet changes and i force myself t keep moving regaurdless of my pain I have five children I don't have much choice , I would love to live my life more actively and not be in tears everyday because my pain is unbearable so that i can perhaps enjoy life instead of dreading getting up and dealing with the many demands of raising my family.
At least you got the lyrica and savella recommended. I'd tell my pcp about it, so she doesn't send more people with fibro to this dr. My pain dr never even suggested lyrica since I was on gabapentin, but he treats me not sends me back to my pcp. The one thing you have got to do is stop thinking of your pain as unbearable. Words like that can make you feel worse. Internal dialogue has a huge effect on how we deal with our illnesses. Yes, those of lesser strength then those of us with fibro, would find it unbearable, but we can't afford to do that. I've had it since I was 5 yrs old and would have given up long ago if I thought that way. Ask around in your area and see if you can find a pain dr who understands fibro. Then get your pcp to refer you. Its strange that a rheumatologist didn't put you on lyrica and savella. I think you'll find that lyrica will help you. It helped me alot but I had bad side effects from it.
I would definitely ask your pcp to refer you to another pain management dr. Sometimes it takes a try or two to find someone that will work with you. A lot of pm drs will start out with a non-narcotic regimine. I think partly to see if it will work for you and partly to see if you are just seeking narcotics. The longer you're together, and the more they feel you can be trusted, the more willing they can be to try stronger medications. It can be a trying period, but ultimately worth it. Just remember that it's not hopeless. There's always hope. But along with a pain management dr, it may benefit you to see a psychologist. Family and friends who don't suffer from chronic pain find it hard to understand or believe in it. That can be extremely depressing. Having someone to talk to about it may be more helpful than you might realize. I hope this helps.
you can always call your insurance company to and ask for a pain management doctor that specializes in fibromyalgia, most of the time they know or your primary doctor should have other patients with fibromyalgia your PCP, should have a list of pain management doctors that specialize in fibromyalgia
I was going through this exact same situation back in November of last year. I had been diagnosed with Psoriatic Arthritis, but each doctor I went to see kept sending me to other doctors. I finally had enough and was about to give up when one of my doctors suggested I see a new rhuematologist. He was able to see me and begin the process of finding an effective treatment fairly quickly. So, I would start looking for a set of new doctors until you find one that will listen to you, and has an aggressive treatment plan.
I have some medical/drug info for you below, but also you definitely need an antidepressant. I have an extremely limited life with many medical problems and migraines which rob me of days at a time, plus only allow me a few hours a day to function. I was nearly suicidal, but merely increasing my antidepressant completely took away my depression. I couldn't have been more shocked, because I told the doctor that all my feelings were completely situational. I told her that no drug could possibly help me. I am currently in good spirits. Later after my depression was gone, I still had some lingering resentment about my situation. That changed after hearing from someone who was much worse and was still grateful for the little that she had. You could also try therapy which my doctor also wanted me to get, but I didn't have the functioning time to go to sessions.
On the medical side, my PCP did prescribe both Lyrica and Savella for me with no problem. Your PCP might now give it to you since the Pain dr. sent you back to them to prescribe it. Also you could try Trazodone which greatly helped my fibromyalgia which no PCP should have a problem doing. You could also try a different PCP doctor while you're at it.
I certainly wish you more pain relief, but your obvious depression is a major factor in your pain. Wish you well.
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