I was in a head on collision (each going 65mph popped a dashboard off with my head) 20 years ago and had a head injury. My head split open to my skull (muscle and nerves severed) in the frontal lobe area above my eyebrow all the way back to the middle of my head in parietal lobe. Since then, I have issues with nerve damage, migraines, memory loss lack of sense of smell and something similar to narcolepsy (I get pressure in my head, I am awake but am confused and can't think, I get sleepy like I've been drugged and then I knock out (not for too long). I also have issues with balance at times and vision. I have been to several neurologists with no success in finding a cause for the narcoleptic type symptoms. I have had eeg's which state my issues are non-epileptic and have been on every neurological medicine you can imagine. I really don't see any of the medicines helping, things typically seem to coincide with weather change. The narcoleptic type incidents happen around the same time as migraines but also seem to occur under high stress times as well. Any advice or leads?
Barometric pressure induced migraines are incredibly common but, for whatever reason, not all medical professionals will recognize a minor change in the barometric pressure, whether it be up or down, as a severe migraine trigger. I have lived with migraines all my life- i have clear memories of my first full on migraine with visual, aural, scent, and taste auras preceding a pain that then caused my vision to mimic that of a kalidescope and all i wanted to do was hide under my covers, cover my windows in dark blankets, and never leave my room again. At the time our doctor made house calls and diagnosed me with a complex migraine and brought in a woman who worked with me to calm myself, to ask for ice packs, cold coffee, anything with peppermint, and showed me pressure points and gave me clothes pegs to help. rainy days brought the bed "fort" out, made with heavy black cloth, ice packs with a bit of cloth soaked in peppermint oil, and rice packs warmed and laced with a mix of peppermint essential oil, vanilla, and licorice. i would chew on some sort of root and the pain would lessen, but it never really went away. as i got older, my doctor gave me ways to handle the pain. but things got worse, and i do elimination diets. have you tried those? feel free to contact me about them as i have several different versions. i too have been on every medication out there. i've done the injections(botox was a horrendous failure), but i do know that there are drugs, both eastern and western, that can help. again, as i always say what works for me might not work for you or anyone else, but as an almost 40 year old woman who has been trying to at least bring my pain to a dull roar since my mid to late teens, i've seen things work wonders and give me a few pain free years, and somethings erase years from my memory and cause me to lose word recall, some of the best years of my kids' lives, and countless friends. please, if you'd like, contact me. it seems as if we share quite a bit in common and we might have a bit to offer each other. i got much worse after a series of head injuries, the most recent about a month ago causing my sometimes aphasia to become so bad that i have spent time sobbing over my broken brain. i hope that you and i can figure something out together as this is no way to live, and there is solidarity in numbers.
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