They tell me I need to get going or I'll never get better; if I slow down I'm giving in, etc. How can I help them understand and how can I hurry up the process of healing, of being tired, of aching, of impatience with myself; of nausea, diarrhea, headaches? I'm only 3 weeks out of the hospital and am getting discouraged.
Please don't be discouraged. Recovery often takes longer than we hope or expect. Our family, and even doctors may not understand. Read all you can and educate yourself on your illness. Then share what's relevant to your case with your loved ones to help them realize what you're going through. My recovery has been slow. And there have been setbacks. It's been 2 1/2 years. But I am better than i was and hope to improve more. Try to stay positive.
Sorry to hear you ve been very ill with sepsis. It takes a long while to recover. Also the healthier you are before the longer it takes to recover. I was a healthy 32 yr old who had never had antibiotics, operation or been hospitilised before. I had sepsis in jan 2017 i had it from an infection in the uterus during labour. I ended up having a emergency c section.My daughter had suspected sepsis too. She had 36 hrs antibiotics & was fine. As you say there are no outward signs of illness & still my mum didn't understand how even after a few weeks i was still having diffuculty getting out of bed, go out or look after a baby. I struggled through each day. I cried over how i felt & tears of frustration. It is absolutely draining along with the insomnia, constant fatigue & memory loss.
You can only really tell people to research post sepsis syndrome which will probably cover how you feel.
Your body has been through a lot & needs time to heal. I started off with walking everyday even if its 5 mins to start with. The fresh air helps. You ll gradually build up. I can now walk quite a distance. I suffered 5 months of constant fatique (tiredness doesn't even cover it) i bought some roseguard tablets from herbalife. They contain rosemary (good for muscular discomfit) vitamin A, C & E. They cost about £28 for a months supply but they are worth it. I took 2 a day for 5 days and by the 6th day my constant fatique and the cloud i d been under just disappeared. I still get the odd tired day but nothing like i had. I wake up & can get up without that fatique, cannot get out of bed feeling. My insomnia has also stopped. My memory is still slightly impaired but is improving. I still have to be careful with what i do. If i have a busy day the next day i take it slower. I have started my clubbercise exercise class something i thought id never do again. Keep going you will get there things will improve i know how hard it is when you cant do what you used too. I applied i will not let this beat me attitude. Every small thing you do is achievement. I hope this helps. Good luck. I hope the roseguard tablets work for you like they did for me.
Recovery takes time. Period.
I am two months post sepsis. This is my second time around, as well! People say, "Oh, but you're over that now!" and expect me to get better quickly, but recovery doesn't work that way.
Best advice: listen to your body. Rest when you need to rest. If you experience cognitive issues (memory trouble, etc.) get some therapy. I do math, read books in a language other than my native tongue, and participate in memory therapy.
Recovery takes a lifetime. I am 9 years out now, I spent 19 days in a medically induced coma, and had multi organ failure. No Health Care Professional understands because there has not been much research on survivors of Sepsis, or Septic Shock. Your life will be permanently changed. You will never feel like YOU again. Check out Post Sepsis Syndrome, maybe you will have better luck than I. I lost all of my friends, then comes the family, that's worse. Then the lonliness of living with the aftermath because no one can see that your brain is not the same as it use to be. It just isn't. No one cares to read about it, or to try to understand. My grown son won't talk to me, and won't allow me to see my only grandson. The Nieces and Nephews that say "I love you auntie", they don't care either. They all fall by the wayside. Sepsis changes you forever.
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