My children, ages 27 & 23 don't understand the pain I'm in. They make me feel like I'm just lazy. I have osteoarthritis in my neck, back, hips, knees & hands. I'm 48 & even my doctor said I have a lot of arthritis for someone my age
I feel so bad for you! The disbelief and laziness is just as hard for you to deal with as the pain.
I will give you more of an answer after I investigate specifically on how to make them understand.
Osteo = Bones
Arthro = Joints
Itis = Inflammation.
You need to make dramatic statements (without drama..Lol) to get their attention.
Ex: "I'm 48 but my doctor said I'm 70"
You can gently tell them they need to take care of their bodies to avoid, as much as possible, this happening to them. The more advanced medicine becomes, the more genetics becomes.
I'm trying to get across that they should not judge until they have walked in your shoes.
"Pain is what the patient says it is"
Have them Google specifically for "families and caregivers".
The point is to focus on being proactive in anticipating your needs. Have a heart to heart and tell them it's very difficult for you to ask for help. You have always been the one taking care of them.
Speak from your heart even though the tendency is to protect them. Explain that you are afraid of the future because you are at your breaking point now! Drama...
Realistically, you will learn how to cope with a chronic disease as opposed to sudden pain. Your mind and body adapts.
Learn relaxation techniques. It's time to baby yourself. Don't carry that extra bag of groceries! The floor really can wait!
You need to move around but in a "smart" way.
A specific site will also teach them what to say and what to not.
You are right. They need education.
Perhaps you can schedule your next doctor appointment when they can accompany you. Tell the doctor ahead of time so he/she will emphasize your goals.
I will get back to you with further info.
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