My niece is suffering from severe ulcerative colitis since more than eight months now, and despite the doctors having tried several medicines (including steroids), nothing quite seems to work to prevent the regular flare-ups.
Now, the doctors have come to the conclusion of soon beginning with infliximab/Remicade (intravenous). It has serious side-effects, so the hesitation of my sister and her fears are fully justified. She´s really under severe stress due to the mention of this medicine.
My question is, does anyone of you have an experience of ever taking this medicine, especially in your children?
I thank you all in advance!