... cancer. She had stage 3 breast cancer in 2010 and they thought this was a recurrance. Thank goodness it wasn't. What type of doctor should we be looking for? Her onocologist is forwarding her records to her pcp but after that, we are lost. Thanks in advance for any help you can give us
An infectious disease dr might be able to help, even though it is NOT contagious, it is a complex disease. A co worker of mine had it and she just used an internal medicine dr. Sarcoidosis can hit any of the organs, so get a good internist for her and at least call your local infectious disease drs to see if they help treat sarcoidosis in your area. If you have a medical college nearby, they can help too. The VJ on MTV, known ad Duffy, real name Karen Duffy, has sarcoidosis in her brain. Bernice Mac had it of the lungs. One of my clients had it of the lymph node under his are. They thought he had cat scratch fever, sardoids is not easy to diagnose. Since it is so complex, I recommend a consult with an infectious disease dr, they handle the rare diseases often too. If your medical college has an infectious disease dr, or epidemiologist, they may offer treatment and also get her in a study, if there is one locally. Best of luck, patti
You should get in touch with a pulmonary doctor. Sarcoid almost always effects the lungs. They call sarcoid the "multi system disorder. I've been dealing with it since 1997. Started on my forehead, then a few years later got in my lungs. I have a lot of symptoms associated with sarcoidosis.
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