Paroxysmal Nocturnal Hemoglobinuria (PNH)
Even with the drug soliris . What is the life span of someone with PNH?
- Asked
- 6 Dec 2010 by nan2010
- Active
- 6 Dec 2010
- Topics
- soliris, paroxysmal nocturnal hemoglobinuria
Details:
Added 6 Dec 2010:
Is soliris going to keep these patients alive longer?
Can soliris cause other diseases?
Responses (1)
suzanne66
6 Dec 2010
The outcome varies. Most people survive greater than 10 years after their diagnosis. Death can result from complications such as blood clot formation (thrombosis) or bleeding.
Soliris (eculizumab) is a drug used to treat PNH. It blocks the breakdown of red blood cells.
Soliris affects your immune system, and using this medication may increase your risk of serious infection such as meningitis.
You must be vaccinated against meningococcal infection at least 2 weeks before you start treatment with Soliris.
https://www.drugs.com/soliris.html
Further Information
- Soliris Information for Consumers
- Soliris Information for Healthcare Professionals (includes dosage details)
- Side Effects of Soliris (detailed)
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I did know all that, but someone else might find it helpful.Thank you