... disease for her little boy. can you possibly tell me if you know of anyone who has direct knowledge of this disease so that she can get some help and advice for caring for her son as he is the only child in our city with this condition due to it being so rare, many thanks
Hi rosie my daughter has this condition..and has just set up a site... if you or the childs mum would like then go on facebook to
Erythromelalgia- A helping hand
there are people with this terrible rare condition that will give tips about how to cope with this illness and it will be good for the childs mother to talk about things with other people as well xx
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