I have psoriatic arthritis and it isn't the joint pain that's so bad or even the psoriasis itself. It's the way I feel trapped in a body that can't straighten out and walk after sitting for even a short amount of time. My doctor says I'm just out of shape, but no amount of excercise seems to help with this. I'm 53 and I've felt like this for years. Please help.
I liked Enbrel which I took for Behcets Syndrome. I had more energy and just felt "well" and not all encumbered by life and what it threw at me. Before Enbrel I was receiving Remacade infusions every 4 weeks. Same benefit but my insurance stopped covering Enbrel so had to go back to Remacade infusions.
It should help with the stiffness and generally help you have a better sense of peace and calm within yourself. It did for me. Can you do aquatherapy or hydrotherapy in a heated pool somewhere??? Water walking and just "hanging" in the pool was so relaxing and did wonders for the aches, stiffness along with the muscle soreness and stuff.
I cannot say about the toenail issue... I am not sure. But, it shouldn't make it worse.
I take it that this doctor is a rheumatologist??? In any case, bed-side manner does help or at least being empathetic to your situation. Does this doctor offer up any suggestions with those not so helpful side comments??? I do feel for you and can understand the pain... honestly... no fun at all and difficult to manage. But when you get to that place where you can function and not agonizing over every movement... then you get some quality of life back and can truly exhale...
I hope I've helped a little bit and others here, too. Keep posting so that we can continue to support you along the way...
My husband takes enbrel shots for his psoraisis & arthritic psoraisis, & all he says it does is that it clear his skin from the lesions. He had it so bad it covered 80% of his body, so I would say it had to help. You also list osteoarthritis which is a very very painful thing to have. We both have it, & I have osteoporosis severly too. The arthritis is so bad, you don't feel like moving after sitting or laying for a spell, but it's so important to keep moving or you will stiffen up badly. I was very young when it hit me, & have been on disability for 22 years. I try to walk my dog every day just to keep exercising. I also have an exercise bench that is a system of pulleys with bungee cord like attachments to do stretching exercises. It comes with 3 different strenghts of cords, & you work your way up to each one & can combine them eventually.
It really is a low impact way of exercising. Maybe it would be good to ask your doctor to prescribe to you physical therapy to get you started on an exercise program. If I didn't do some exercising, I would probably be bedridden. It's very important that you continue to move even if it hurts. I totally get where you are coming from, & unless you are overweight, you may just have a doctor that is not very empathetic. I assume this is your PCP not a rheumatologist. I suggest you also see a rheumatologist for your problems if you are not already. I have never seen one that doesn't have compassion for someone in your condition. I wish you the very best...
Any tar bases shampoo's are fantastic, I use T-gel from the pharmacy! I have just been off my enbrel for 8 weeks due to spinal surgery and my psoriasis came back with avengence on my head and spots over different parts of my body but I'm back on my enbrel which is starting to clear it again but the shampoo is helping move it off my head quicker! I used to get it on my finger & toe nails but it went away with the enbrel! The best thing I find to loosen my body is hydro therapy in the pool, 30 minutes of walking & some different exercise with equipment like water weights & foam sticks! I also go to a physio once a week and he is fantastic with any sore parts of my body, if they need a loosen up! Hope all goes well as its a life taking disease but stay positive & don't let it beat u! I have had 7 surgeries due to the deformative joints caused by the arthritis & with love & support I have gotten through it some how! Take care! :-)
- Enbrel Information for Consumers
- Enbrel Information for Healthcare Professionals (includes dosage details)
- Side Effects of Enbrel (detailed)
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