Starting again with the tight upper bronchial and feeling lousy again. What is the solution, driving me nuts! I have COPD but Dr said I'm 85% functional. doesn't feel like it :( short of breath, lethargic..etc I'm taking 4 breathing treatments a day, albuterol, Spiriva 1 a day and advair 2 a day... whats next? I hate to start Predsione again but if that's the only solution I guess I have too.
Hi. I have ILD. My lungs are at much lower level, under 50% from fibrosis in the lungs. Prednisone has been continuous for nine years. I look at it this way. With prednisone I can breathe better. Although now on oxygen, it has prolonged my life considerably. Far less scar tissue forms. I would take just about any med if it meant my lungs would not fail. I had PCP, a pneumonia caused by Protozoa in the lungs. Anything can settle in there so take what they suggest and go with it. Methotrexate works for you? Good. a flareup and difficulty from no where is normally a pneumonia deep in the lungs. May not even cause a cough. Get to the doc and get a listen to the lungs. I get these pneumonias all the time and figure it out because of strong fatigue. If I start running a temp which is over 99 degrees I know I need a doc now or I will soon be in the ICU again. Prednisone does mask symptoms. You will learn your body. When you feel sick, you are. Be sure you have a good Pulmonologist. It is a long term relationship. Good luck to you. Oh, and try a pulmonary rehab class. Very helpful and you will learn a lot. Wishing you well, Karen
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