from blood work I had done in Nov, 2012. I went to the Dr because my hand and foot was very swollen thinking It was infection he said no it was arthritis. He thought it was RA so sent me for blood tests. Later found out not RA and negative on ANA. I am going to lung Dr next week so wanted him to have results. When I picked it up had a test Creatine Kinase Total and was 325 H reference range is 29-143 U/L. He never informed me and did not do a follow-up test. He did send me to Reumitogist in Dec. She never mentioned the tests. Now it is 9 months later. I changed my Dr to a new primary in July. (Should have done it years ago but worried that new DR would not give me ambien). I'm going Monday to her and lung Dr thurs. Any ideas why he would order test then not act on it? Should I be worried? I have lots of muscle cramps in legs and I did have surgery on my hip in April ( always in pain). I have just been diagnosed with ILD, complex kidney cyst and have low cortisol. My thyroid came back normal in March. I have NOT taken any meds or worked out that would raise CK. Help!
I have no idea what that all means, however, I asked a similar question about test results that sent my primary into a tizzy and the Rhuemy was like, "no biggie." The answer usually is that what a GP might find serious, the specialist has usually seen much worse. It is unfortunate when these things aren't explained properly.
I am glad you have made the Dr changes, just make sure to ask these same questions. Good luck!
An elevated ck points to my disease, a Myositis. ILD goes with it. I think we talked about this.
Anyhow, a ck of 325 is not a biggie. However it does indicate a developing condition or your response to an accident or surgery. When my ck goes up it is often over 400 and as high as 7200. At the moment I do not recall your details. Will look them up later. However, they need to repeat this test and see if there is a difference now. The reason you want it is because that number may have been attributed to your hip injury and surgery or healing process when they took it. A second test will determine if this is an issue. Insist on it. If still elevated or even more suggest a Myositis disease and ask to be tested for the Jo -1 antibody. Hopefully that disease will be ruled out. And be sure to get the results from all lab tests. I keep a file on them.
Let me know how the visit turns out. Don't forget your list of questions when you go., Karen
In Nov when I had this test I didn't know I was going to have surgery. I never injured my hip started as bursitis in 2005 both hips. Only thing I can come up with is I have lots of muscle cramps in the evening for many years (I think 2006) and he never ran tests just gave muscle relaxers. The cramps go in different parts of the legs sometimes can't even roll over to get up have had to call husband to help many times. Worst pain of my life on thighs. Maybe Dr ran for that. I don't go to him any more so can't ask. I will review your ILD for me again- guess I don't want your ILD no transplant. I Never get a colds. I was 17 years old when I had my last one. I'm 61 now. I've only had little allergies so I don't believe I have respiratory kind. This is a good lesson to everyone get your results! I know better now. Thanks Karen
- Creatine Information for Consumers
- Creatine Information for Healthcare Professionals (includes dosage details)
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