Hi, just been given 1x 100mg doxycycline daily for 15days for Lyme disease. I was bit around 6weeks ago, only experiencing mild symptoms. I just got the blood results 2day which showed negative. Knowing how poor the testing is I then asked the nurse if she could give me some antibiotics. She was a little surprised I hadn't been given anything already. 8 days ago when I first went to the doctor, he took a quick look at the rash on my leg and immediately confirmed what I already suspected to be Lyme. I developed a classic bullseye rash which gradually grew to about 8". First day on the medication so I can't realy comment but I wanted to ask if ppl think my doze and course seems okay. From what I can tell most ppl seem to be on a much higher doze. I would rather get a little ill from the drugs side affects than spend potentially the rest of my life suffering from Lyme.
PLEASE, PLEASE, PLEASE go to ILADS.org and find a Lyme Literate doctor immediately (search is under CONTACT tab by typing in your zip code). I have become a Lyme patient advocate that helps families navigate diagnosis, treatment and recovery of the disease because my entire family has been affected. I passed to my kids in utero. I helped to develop the first Lyme screen 28 years ago so I understand the limitations of the testing. After years of feeling horrible (fatigue, anxiety, low thyroid, heart block, anemia, depression, arthritis, psoriasis, word loss, memory loss, word slurring, tripping, light and sound sensitivity, etc) I found the right doctor who immediately diagnosed and treated me for Lyme. I went through 2 years of many rounds of many different types of antibiotics to kill all of the Lyme forms (spirochete, persister cell and those in biofilms) and the other infections you get from ticks. Rarely would you get one thing from a bite so you need drugs to kill anything you could be infected with. Do not rely on ANY testing as the tests are inaccurate and Lyme is a clinical diagnosis anyway. This means diagnosed on symptoms and not tests. I was cured after this extensive treatment and felt amazing after having experienced severe neurological, arthritis-like and MS-like symptoms. I got bitten again this year and immediately started to itch all over. My doc said that my peripheral nervous system recognized Lyme (or co-infections) so he put me on 3 weeks of Amoxicillin because I was going on a beach vacation and Doxy makes you have light sensitivity. I also took 3 weeks of Doxycycline after I got home. Neither drug killed the Lyme. I took the new Nanotrap test (ceresnano.com) and was still positive. This test is accurate if it is positive. If negative, it could be that you are not expressing the Lyme DNA in your urine the day of testing if you are in a chronic vs acute situation. The test should be used for certain situations. Find a good doctor and do NOT let this disease fester. It is life threatening and definitely life altering. Like it's spirochete cousin syphilis, that also causes neurological, joint and heart failure, I believe that it is blood and body fluid born and can be passed in our blood supply and sexually. My opinion after working with so many affected--- do not mess around with Doxy.
- Doxycycline Information for Consumers
- Doxycycline Information for Healthcare Professionals (includes dosage details)
- Side Effects of Doxycycline (detailed)
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