My doctor suspects that I have temporal arteritis. I have all the symptoms but the weight loss. But my MRI, MRA and sed rate was normal. Does it always show up in these tests?
Your sed rate will probably be elevated. Mine was only marginally elevated. Your C-reactive should also. It is all in how the Dr. interprets it, as I had found over and over again. I started by losing my eyesight in random episodes. That occured 35 times over a full month in all types (blurred vison mostly, twice with compete loss, and twice with double vision). I had some symptoms, but not others. They all do not have to be there. The MRI's & MRA's supposedly came back negative. I had no temporal headaches; only low grade frontal over the eyes (mostly over the left eye). And, I also had a low grade fever. No scalp issues, no jaw pain, no temporal headaches, although they did finally migrate there after lack of treatment. I did have some pain into my neck and shoulders. I had no weight loss. I felt like garabge and was very weak overall.
Here is the issue: GCA is a true medical emergency. It dictates that you be treated immediately with the prednisone and should not be denied even if it will effect something like diabetes. That is what happened to me, and I even was asking the doctors to get me started on the prednisone. They did not at first.
My brother is a doctor that lives a distance from me. He was the first to figure it out and that was strictly via the phone. I live in a state with the most mal-practice lawsuits in America. So, when the Drs. down here saw I was a diabetic, non-insulin dependant, with 5.5 A1C's, and as controlled as one can be with diabetes, they still did not prescribe the Prednisone. I had to fly north and get Drs. that WOULD treat it. I had a total of 3 southern (that did not treat me, yet ID'd it on their reports), and 4 northern doctors that ID'd it, and I was finally treated immediately after flying north. What a difference! And, no eye loss from that point on.
The diabetic swings in sugar I have been controlled with lots of monitoring, and strict proper diet, daily exercise, and I walk a lot over the course of a day.
Prepare not to sleep to much and as you normally did. Comes with the territory. But, you should feel much better overall.
Best of luck!
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