I would like to know does cellcept has any postive effect in the treatment of erythema multi forme major ?I've suffer from it for over twenty four years with taper measure of prednisone being the only medication that has any effect on it .The symptom are rashes, blisters on hands and feet lesions in mouth throat,tongue serve joint pain sores over eyes,ear light sincertivy, the enablity to walk, talk, write, play.I've been miss diagnoses with herpes a couple others that are to many to remember Hiv test that are also to many to remember All the research that I've done over the year seems to be talking about someone else.I'm looking for anyone out there that has something simular,maybe a few pointer on dealing with the doubts the you O.k suck it up.Just someone that can relate to the mood swing loss of weight feeling of hopelessness.The reason I'm here is that my Physician's are finally hearing my pleas about finding altertive way of treating the illness because the prednisone causes motor skill loss mood swings depression and kidney problems and so much more.P.S the medications.are Azithromycin 250 mg,Lidocaine Viscous 2% Motuh/Throat Solution,Famotidine 20 mg,artifical tears,Pathaday 0.2%opthhalmic Solution
In a variety of inflammatory skin disorders, mycophenolate (Cellcept) has been successfully used both in combination with systemic steroids and as monotherapy. Early reports on efficacy and tolerability suggest that mycophenolate offers hope to patients with immune-mediated skin disease.
However further trials are needed to validate its safety and efficacy.
Sounds like we are in VERY similiar, if not identical situations.
Ive had Erithema Multi-formate Major for about 2 years now, and have seen more doctors and specilists about it than you can imagine. For the first... 18 months of my sickness it was miss-diagnossed as "pemphagus," (they were still treating it with pregnizone) but they have done countless HIV and herpes tests, all of which have been negative.
After essentually giving up that I would EVER get healthy, my parents took my down to the MAYO center in Minnesota. (a VERY good, but VERY expensive hospital). After a number of tests it was determined that I did have the Erithema Mutiformate Major, and the best way to deal with it was with a drug called "CellCept".
Ive been on this CellCept for a bit over a month, and havnt had a "flare-up" since Ive started on it, which is awesome news to me. SO far, the Cellcept is DEFFINITALLY a big help, and i recommend it big time.
One thing... I have noticed a bunch of semi-minor side effects... such as stomach pain/diarria, but nothing TOO serious, and my body seems to be adjusting the longer Im on the drug.
Basically the plan my doctors have me on, is to stay on this cellcept for the next year or 2, and in the meantime I can start weening myself of off the pregnizone ive been on. (Ive been taking 30-50mg a day for the past year, which as im sure you've experianced cause a whole bunch of wierd side effects with your mood and personality.)
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