I have been diagnosed with both fibromyalgia and chiari malformation(type 1) in August/September of 2009. I'm trying to find out more about both of them and how they are and will possibly be affecting me. I'm 21 and in college and struggling with school while taking meds and dealing with excruciating headaches and the pain of trying to get around my college campus. What are the best/most effective and least drowsy meds that actually work for these type of headaches and for the pain? I'm currently on Lyrica, Zoloft, and lidoderm patches ALL for pain... I switched to Zoloft because Elavil knocked me out... but Zoloft apparently can cause headaches according to some websites. Any help?
Does anyone else have BOTH Fibromyalgia AND Chiari malformation(type 1)?
- 7 Dec 2009 by fredrika09
- 19 October 2016
- elavil, lidoderm, lyrica, zoloft, fibromyalgia, chiari malformation
Added 7 Dec 2009:
Elavil is also called Amitriptyline, Zoloft is also called Sertraline, and Lyrica is also called Pregabalin...in case that caused any confusion.
I was diagnosed in September of last year. I was already taking Zoloft. My doctor now wants me to try Lyrica. I have tried various ways to deal with this. Both from a conventional and homeopathic standpoint. I have the headaches too. Doing neck stretches help alot for me. Have you seen a massage therapist? Preferably one that is trained in FM. You have to stay mobile. the walks around campus are probably helping you. Its just hard to see that with the pain you are in. Good luck with your search.
So just to kind of add information to this question, I've recently been scheduled to have the endoscopic Chiari decompression surgery at the end of May of this year and my surgeon was telling me that he's not sure that I have true fibromyalgia. Quite often when a patient has Chiari, the fibromyalgia is actually just Chiari symptoms but because both syndromes have very similar symptoms patients are often misdiagnosed.
Anyways, I'll update this later on after surgery to update anyone who reads this as to whether or not this is true for me.
Also, if you've been diagnosed with fibromyalgia and have excruciating headaches and meds just don't seem to help your pain get your brain MRI-ed because you could have Chiari and just need decompression surgery to relieve your symptoms.
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