I have Hidradenitis Supportiva I am on Remicade 300mg off label use starting at 0,2,4 then every 4 weeks. My specialist wants to start me on methotrexate in conjunction with the remicade, I have had great results with remicade already three infusions in but I was curious as to why I need to take methotrexate in conjunction ?
Hi I also take methotrexate and other stuff. I've had this illness for more than 15 years. I've been to all kinds of doctors, the doctor that diagnosed me all those years ago said to me wit a smile on his face n said oh u have h.s. I was lucky he had two other patiences wit the same thing. He pointed to his head n said to me whatever going make u happy. I thought of that as strange but I no now what he talking about. About 3 years later he retired. So I was lost most doctors never head of HS they don't no what it is. The worst is the dermatolists I've seen at least 15 or more. N they always stood away from me not one of them gave a gauze or banaid. I also left crying. But the thing I've learned is u gotta go to a primary care doctor cause they will give u antibiotics. Pain meds they r a must n if u need something lanced. They usually send u to a general surgeon. My new new doctor, he's a nice guy but I no when he sees me in his office he wants to run away from me. He doesn't no what to do for me. So now he sent me to a wound care office. Well will c how this goes. Let me get back to ur question the metho slows down ur immune system that's y u could get sick real easy. I've had my groin cut out by a cancer doctor. It helped for 8 years. But guess what's coming back. Not only do I look like Frankenstein down their but right next to my scars theirs hs. I was told they don't do the groin surgery anymore. Cause the hs eventually comes back. I'm glad I had it done it gave me years of relief. So this is what I think clindamyacin 300mg and bactrerum both r antibiotics. I was on them for years n after that doctor dissapeared. My new one said its not good to live on antibiotics. Every three months I ask him for prescriptions for them the swelling goes down after a couple of days it stops bleeding n sometimes they smell after one day of antibiotics there's no smell the pain goes down. What's really good is a bath moist heat they told me to sit in a bath for 6 hours a day when I was first diagnosed. So I did for 2 years now I hate the bath but if u get a bad flare up I put in hibiclens it's an antiseptic n Epson salt n Black Sauze it's an old medicine its a cream that my dad used put on me if I had a splinter its a drawing Sauze aka ichthammol ointment it's soothing I love it but it does smell like tar n I take pain meds n of course I hate to tell u what else u get Well sorry to tell u get depression n why not look what we go though so I also been taking Prozac for years. I no I talk a hell of a lot so if I could help u just ask Lisa Keck
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