I injured my right ankle at work about to years ago and have been in severe pain ever since. I worked for about three months on the injury before they sent me to a specialist that said I tore 2 tendons and fractured my tibia. After 2 surgery's nothing has gotten better just more pain threw out my body. My pt thinks I have rsd but my doc isn't sure he says I have all the symptoms except excessive sweating around the injured area. He ordered more pt and said to come back in 6weaks and if no change he is gonna put me at mmi and send me to a pain management doctor with the diagnosis of rsd. My question is does the area have to sweat really bad to have rsd and what can I expect to go thru. I'm a single dad and there are days I hurt so bad when I wake up I my arms and legs feel like someone is stabbing me with needles and all my fingers and joints feel I jammed them on these days I can't even bring myself to get up with out help. I'll be on it scares the hell out of me
I am so sorry ... but it sounds like what my daughter went through with this progressive disease. She was diagnosed with CRPS about 6 years ago. She did not have sweating, just the constant horrible stabbing pain, first in one leg then spreading to the other and to both arms. It started with just a tumble down the stairs. The pain clinic pushed her to have two nerve block injections that made the pain even worse! We will always wonder if she hadn't had those injections if the pain would have over time just gone into remission. It is so heartbreaking as a parent to not be able to do anything to help your child. She moved away to a state with medical marijuana is doing better with that therapy but will never be my same little girl until a cure is found for the rotten disease. Best of luck to you and don't give up!
dgentry33; Yes your doctor should know better than just give you that answer, Not everyone progresss in the same way. Just like anything else and the progress of it can differ greatly as you just asked the last lady if she could still work, At this point your going to have to roll with it and see how it affects you some can work and go about their daily stuff. But it just depends on how bad your symptoms get. And yes I have heard where some people have gotten great results with the Marijuana for this purpose but see what they can do for you first where you are and keep that as an option. Wishing you all the best. But like I said as with many things just because your missing one symptom does not mean that it could not be what the doctor said. Or if you are still in doubt there is nothing wrong with getting a second Opinion. Best of luck to you speak to your doctor and see what the normal game plan would be at the stage your in. Chuck1957
This infuriates me. You need to get another Dr. You have lingered for so long it's not surprising that some of the initial symptoms are not there. You don't need every symptom. You more than meet the criteria for rsd. The longer you wait to be treated the less likely your body will respond. Your prognosis is much bleaker after 2 years of the Dr diddling around with your diagnosis. The same was done to me so they could avoid a law suit. Now my RSD is systemic and I often get drs in hospitals and pain clinics look for stage 1 symptoms limited to a limb or 2. Even in the earlier stages mine went quickly from one arm to both, to both feet, then both knees, then became systemic after no treatment. Now my cardiovascular system is affected. My lungs too. This makes getting treatment difficult. My neurologist Dr Schwartzman retired and I'm in limbo again. Good luck. But get a diagnosis pronto!!!
Everyone is absolutely RIGHT!! You do not need increased sweating to diagnose RSD, and especially sweating in the same area as the pain. There are doctors who still don't think RSD is real, and others who will test you repeatedly until they can rule out other reasons for your pain. These doctors don't know what to look for. They're usually worker's comp doctors or general neurologists. You need to find a neurologist who specializes in RSD. I started sweating severely 10+ yrs after my pain started. Your sympathetic nervous system controls your body's reaction to trauma. Like if someone slap's your face, it will hurt, get red, and maybe swell. RSD is like having the wires crossed in your sympathetic nervous system.
Whatever your REAL original trauma was (car crash, slip & fall, surgery, etc), RSD doesn't just usually stop the original site from feeling better, it makes other unrelated areas of your body feel like they've been traumatized too! In my opinion, pain management doctors make people with RSD feel so much worse. A so-called pain specialist literally DISABLED me. Once your RSD has progressed to a certain point, my RSD specialist (who also has RSD) thinks any invasive procedures make you worse, and that includes nerve blocks and trigger point injections. And you should never have any other surgeries unless absolutely necessary. You sound like you need the same treatment as me - prescriptions for pain & whatever else necessary, and aqua therapy (in a warm therapy pool). I sincerely hope you find help. Good Luck & God Bless.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 5 Aug 2009 • 10 answers
Posted 1 Oct 2011 • 4 answers
Posted 27 Oct 2011 • 4 answers
Posted 16 Nov 2012 • 2 answers
Reflex Sympathetic Dystrophy Syndrome - I have had rsd four times or what you could call flare up's?
Posted 31 Oct 2015 • 1 answer