Do I have fibromyalgia?
- 29 Jul 2016 by laurel81
- 2 Aug 2016
- pain, fibromyalgia, neuralgia, nerves, nerve
I've been told by Dr's over the years that I have it. But my main pain is from my upper and lower back. I've had surgery twice.
But my question is I do have nerve damage but when I just barely touch certain places on my legs like the side and upper front and buttock it's very painful. Every time I ask my orthopedic Dr and pain Dr and medical Dr they just say it's probably fibromyalgia but it stops there. I take tramadol so I guess they figure that's all they can do.
Does anyone have these symptoms only on the lower extremities? I thought it was all over.
They don't seem concerned but I want to know what it is because it hurts just to lightly put pressure on those spots rather wide spread.
Added 30 Jul 2016:
The neuro surgeon told me the pain I get from barely putting any pressure on certain areas is bursitis. I looked it up and as far as I can tell bursitis is deeper not at the surface.
I just want to know if it's a symptom of fibromyalgia or something else. Because the pain is so intense it worries me and I really want to know what it is
I'm sorry you are having these problems. Not having trust in what you are being told seems to make it worse because of the energy needed to worry !
Fibro is more of a widespread musculoskeletal pain associated with feeling unwell constantly. Fatigue (not just tired), mood changes and problems thinking-memory,word finding,etc.
It's nothing that shows up on lab tests.
Chronic fatigue syndrome may go hand-in-hand. I hate the name of that diagnosis because anyone with a busy lifestyle may think they have it. It's totally different !
It gets harder and harder to get and stay out of bed.
I think your neurosurgeon came closer with bursitis. It is deeper involving the joint but if you have a bad case it may be reflected more superficially. I'm not sure about the front of your legs. Perhaps seeing a rheumatologist could help.
When you get a response from a doctor you NEED to not leave until you do!
It's hard to grab them as they are going out the door! Lol... but they owe it to you. They gave you a fibro diagnosis which could be a life changing syndrome.
They need to put their money where there mouth is! WHY do they think that it's fibro?
WHAT can you do to help yourself- nutrition, vitamins, exercise, signs and symptoms that it is getting worse, what medicine should you take.
I'm on a rampage (lol) on docs throwing out a diagnosis for their inability to pinpoint more accurately. It's an easy diagnosis to use because they don't have to do testing as it doesn't show up abnormal on anything.
Don't worry because worrying doesn't answer any questions. Next appointment stress the importance of patient teaching !
It's part of what your paying for !
Remember ... the customer is always right !
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