I remember Serena Williams was involved with a campaign for menstrual migraine some years back. Here is the press release...
Serena Williams Launches 'RALLY for Menstrual Migraine' Campaign With Endo Pharmaceuticals
First Menstrual Migraine Website Announced - www.menstrualmigraine.org
CHADDS FORD, Pa., April 12, 2005 /PRNewswire/ -- Tennis great Serena Williams and Endo Pharmaceuticals Inc., a market leader in pain management, today announced the launch of a new program for female migraine patients. "RALLY for Menstrual Migraine" was announced today at the American Academy of Neurology meeting in Miami, Fla. The "RALLY" (which stands for Raise Awareness LocalLY) campaign is part of a national educational effort to encourage women who may suffer from menstrual migraines to talk to their doctors about their condition and appropriate treatment. Separately, Endo is also supporting the formation of the National Menstrual Migraine Coalition, led by the National Headache Foundation and a group of leading headache specialists.
Serena Williams suffers from menstrual migraines along with nearly 13 million American women and has decided to tell her story so that women will know help is available.
"I suffered with menstrual migraines for years before my doctor found a treatment appropriate for me," says Williams, one of the most dominant women in tennis whose game has sometimes been severely affected by her migraines. "Now, I've joined the RALLY for Menstrual Migraine campaign to tell women my story, let them know that there is hope and that they should seek help."
Last year, the 23-year-old Williams began using Frova (frovatriptan), Endo's migraine medication, to successfully treat her menstrual migraines, which had plagued her since she was 18. Prior to Frova, she had tried a number of treatments without success.
"I really struggled with menstrual migraine, but using Frova has truly helped me," said Williams. "It helps relieve the pain."
The "Rally for Menstrual Migraine" campaign includes the first website dedicated to menstrual migraines, http://www.menstrualmigraine.org , and is designed to raise the profile of menstrual migraine as a severe, long-duration migraine. The campaign will encourage women to talk to their physicians about available treatments for menstrual migraine.
Menstrually Related Migraines (also known as MRM) can have a serious and debilitating impact on women's lives because they last longer than non- menstrual migraines, tend to be associated with severe pain and come back more often. Patients with MRM may suffer from migraines at any time, although their pain is frequently linked to their menstrual cycle. Up to 60 percent of migraines in women are associated with menstruation. Pain from these monthly migraines can disrupt a woman's ability to function for up to three days at a time.
Endo also is supporting the formation of the National Menstrual Migraine Coalition, led by the National Headache Foundation and a group of leading headache specialists. The coalition will help educate both patients and physicians about the prevalence, diagnosis and treatment of menstrual migraines. Information on the coalition and menstrual migraine is available at http://www.menstrualmigraine.org .
"As a market leader in pain management, Endo is committed to helping women who suffer from menstrual migraines find appropriate treatment, and we are honored to be allied with Serena Williams, the National Headache Foundation and leading headache specialists in educating women and their physicians about the condition and the availability of effective treatments," said Peter A. Lankau, president and chief operating officer of Endo. "We believe that this is an important women's health issue that has a substantial impact on women's quality of life, ability to function and productivity. By consulting with their physicians, women can identify therapies like Frova that can help them treat these monthly debilitating migraines."
Frova (frovatriptan), which belongs to the class of drugs called triptans, can effectively treat menstrual migraines and other long-duration migraines. A meta-analysis of five randomized, double-blind, placebo-controlled trials found that 83% of patients experiencing migraine with or without aura who took Frova did not experience recurrence of their migraine. These data suggest that Frova has the lowest average migraine recurrence rate of any triptan. Frova is not intended for the prophylactic therapy of migraine or for use in the management of hemiplegic or basilar migraine. The safety and effectiveness of Frova have not been established for cluster headache, which is present in an older, predominately male, population.
Frova is generally well tolerated, with a safety profile consistent with the triptan class of medications. As with other triptans, Frova should not be used in patients who have uncontrolled high blood pressure, have heart disease or a history of heart disease, have hemiplegic or basilar migraine, have had a stroke, have blood flow problems, have taken a triptan or ergotamine type medicine in the last 24 hours or have any allergic reaction to the tablet. In very rare cases, patients taking triptans experience serious heart problems, stroke or increased blood pressure. In clinical studies, the most common side effects were dizziness, fatigue, paresthesia (tingling), flushing, headache, dry mouth, hot or cold sensation, and chest pain. The FDA-approved dosing for Frova is one 2.5 mg tablet up to three times within a 24-hour period.
SOURCE Endo Pharmaceuticals, Inc.
Frova is a wonderful triptan. It offers relief for many people. At work, we also recommend that a menstrual migraine sufferer take an NSAID (we usually recommend Mobic) for two days before, then during and two days after your period. Sounds simple but lots of people get relief from this regimen.
Hi there, yes I suffer from menstrual and cervical migraines for the last 8 years. The triptans unfortunaly do not work for me-i have tried everyone and be to several neurologists who all think they have the answer. This summer had to go to hospital twice for my migraines-they give me a hard time, ask me how do i know its a migraine, i just want to jump off the table but have no energy to argue with them. the only thing that works for me is dilulitid iv, magnisum iv. But it is so hard to get anybody to understand pain is pain. They don't want to treat migraines with narcotics but its the only thing that works for me. Good luck and i hope u find something that works for you. i really can sympathize with u.
Birth control pills seemed to make me have menstrual migraines and I backed up the pills by a day so I would have the migraine on my off day. Alot of foods have nitrites that make migraines more frequent and worse in terms of pain. Read up on migraines and adjust your diet and it will at least lessen the pain. If you are on the pill, you may be able to switch to another type and lessen them. Maxalt did work for me, but, I was one of the rare ones who had a reaction. I still would rather have a migraine than get pregnant unexpectantly. Talk to you pharmacist and see what BCP has the least incidence of migraine. Elavil also helped lessen my migraines and it is cheap when you get the generic for it. Hope this helps, i feel your pain!
I definitely have cycle migraines. I have it narrowed down to the day. My strategy is to take an Imitrex or Axert the night before and 2 when I wake up then repeat. This is usually effective. The important thing is not to mix the triptans and make sure I stick with whichever one I started out with.
OMG--- I have cramps BAD every single month and thought I'd tried everything to kill that extreme eye-popping headachey feeling,along w/ the awful pressure in my stomach... Vicodans and Norco's won't even help.But since I started taking the simple over the counter Midol or Pamprin.There is something in those that even takes the bloating off me.And within a few hours.
They won't take ALL the symptoms away ... but they sure knock out the worste part.
Hope this helps.
After working in the medical field for over 20 years, I've noticed quite a bit. Two things that stand out are that migraines tend to intensify in females during menstruation and seizures (if you have a seizure disorder) also increase during menstruation. I have no idea why this is and would love to find out. I often wonder if hormones play a big role.. I used to have terrible irritable bowel syndrome - not to be confused with the Terrible Towel Syndrome - LOL - can you tell I'm psyched that the NFL season is back? I had chronic daily diarrhea - and often, just by chewing one mouth of food without even swallowing it, I was headed for the bathroom). I ended up with a uterine prolapse 2 years ago at age 40 and and not long after my hysterectomy, my IBS went away.
Very strange, and even though we couldn't have children, my periods were awful, soaking at a minimum of 1 pad every 45 minutes to an hour for about 3 days, and my hysterectomy was one of the best things I've ever done, though it is quite drastic to do for migraines and I certainly would not recommend going thru major surgery like that to rid your migraines (or if you have a seizure disorder). Now I have no periods (just the PMS because I still have my ovaries) and my IBS has cleared up. If I had known back then what I know now, my uterus would have been yanked long ago due to the extremely heavy bleeding but I wanted to give it a few more years just in case we got pregnant (we're amongst the 20% of couples where they cannot figure out what is wrong and we didn't have the tens of thousands of dollars to pay the reproductive endocrinologist for in vitro, which ran, at that time, around $15,000 for *each* attempt with a 19% chance at pregnancy. I was also told it generally took about 5 attempts). Hey, if you're in medical school, residency, etc.and want to make good money, go into repro endo. Rarely does insurance pay, so quite often, there is no discounted rate, and couples are very desperate to have children, so it plays on their emotions.
If I were you, and you haven't already, I would see a neurologist. There are so many migraine medications out there now, good non-narcotic medications. One thing that **might** help is to start taking Tylenol or ibuprofen (only the recommended dosage) around the clock at the first sign of your period and continue it until your period is over. Make sure this is okay with your doc. It might lessen your migraines or even prevent them. Ask your PCP for a referral to that neuro doc if you haven't already.. Hope you feel better and have a lot of migraine-free days.
I have menstrual migraines since I was 16 year old. I usually take paracetamol but later switch to ibuprofen. Take the drug as soon as you feel the pain, so always bring the med with you. A week before your monthly period, do some aerobic exercises like walking, biking, swimmings or hit the gym. Always check your blood pressure to rule out that the cause of your pain is hypertension. Talk to other migraine sufferer or let others know your condition so they will know what to do during the migraine attack.
Yes I have suffered with them and the best thing I ever did was visit my GP. Since i began being given meds for those migraines, medication has advanced a lot, and what they have to offer now is so much better. I have a script for 6 tablets called naratriptan. The GP says to take one on the onset of the headache, this drug for me is a real wonder, as it works really fast clears the migraine and makes me feel fit to work or go out and do what ever I want to do with no problem. Where as with some meds you can feel sleepy and all you want to do is stay away from noise light etc, and days are lost because of this. This drug is one of a family of meds for migraine, so if one does not help there are others that will. They also use on some occasions Beta blockers to cure migraines, they even have ways to prevent these kind of headaches before they begin when it is hormonal , so get help from your GP, its well worth it, to get your life back and not waste time every month feeling so ill you cant do any thing but rest. Good luck, hope it helps you too.
I have had migraines since I was 13 and I am now in my 40's. Within the past 2 years, my migraines have seem to exploded. They have gotten worse and worse which in turn, I had to apply for SSDI (which was approved to my surprise). But I do see an excellent migraine specialist doctor in my area. We started a different kind of migraine diary and noticed that my migraines would be super intense during my periods. So he told me to start taking 1/2 Maxalt and 2 Aleve everyday starting about 5 days before I am due to start. I do believe that this past month (December) was probably the first month that I didn't have more than 16 migraines in a month. So I am not sure if the above regimine helped with that but I was averaging 16-22 migraines a month. I am so pleased that last month was such a minimum amoun, it makes me believe that there is a light at the end of tunnel and I may start being well enough to eventually start working again.
I suffered from menstrual migraines as well as regular migraines, so my doctor just had me skipping my period via OCP (birth control). It worked very well. I had to have a hysterectomy in 2005 for endometriosis, but I still got horrific migraines, they just had no regularity. I now take 200 mg Topomax and 400 mg vit B2 as preventatives and that is working very well (I've been doing it for about 4 months & had only 2 migraines). It took me a while to find the right doctor & the right balance of preventative medication, but once you do it's great! Prevention is the key, I think. Best of luck!
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