Has anyone that was diagnosed with Lupus or fibromaglia? Suffered symptoms and even been tested a few times before finally being told that it was one of those things???
Were any of you finally diagnosed with Lupus or fibromaglia?
Added 1 Feb 2012:
Sorry I should've been a lol more clear on my? :) I want has anyone been tested over and over and/or been to a Dr several times but told other wasnt anything to find out later it was?
Many of us on this site have one or the other. I have fibromyalgia and my doc thinks I may have lupus as well.
I'm so sorry, but I don't quite understand your question, could you add more info?
Or are you having a difficult time being diagnosed? (for some reason I though you had been diagnosed with fibro)
All the best to you,
Good morning, I think we talked yesterday about your problem & I suggested you probably have fibro as you present with allthe classic systems. A rheumatologist can give you that definate diagnosis, plus do the ANA panel for other things such as Lupus. Some people with Lupus go into remission at times, & their panel may not show at the time that they have it. My tests were on the low side, but they were positive 3 times. I have talked with a doctor online at WebMD about the so called butterfly rash as mine never appears when I see the doctor . Usually only in the evening when I'm at home, & their offices are closed. She said this is very common to happen. I also get rashes that itch like crazy usually around my shoulders (where I can't reach of course)& on my upper arms. I sometimes scratch in my sleep til I'm bleeding it is so itchy. At any rate I have never had the blisters you speak of.
I remember you mentioning about even having clothing bother you at times, & that again is classic fibro. The nerve endings are so irritated even the skin can hurt by touch. You really still do need to see a rhematologist to get a confirmation of what is going on with you. I wish you the best... Mary
Hi, keep bugging your doctors and don't stop. I have always been a very active person and a couple of years ago I started to become really weak, wasn't feeling very well, not quite sick but just not me. I kept going to my doctors insisting there was a problem but whatever tests they did they all came back inconclusive. It wasn't until I started gaining weight (50 pounds later) and ended up in hospital that they finally discovered that I had lupus and it was aggresively attacking my kidneys. Yeah me. So keep after them and see other doctors. I have recently seen a rhumatologist that saw immediately on my old blood tests that I had lupus, so why didn't my other doctors see it. Internal medicine doctors know the most about these issues. Good luck
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