... exhausted (even sitting or lying down), no appetite and feeling like no-one will understand how I am feeling. I feel so low in spirit and have been on my own with no-one to talk to for over a week now. I haven't been able to return to work and don't feel like doing anything. How do others cope and do others feel like this, too? The feeling of hopelessness is dreadful. HELP!!!
When I came across your question I was in a hurry to respond right away but then noticed that it was asked a year ago. I am hoping that you have found some comfort as well as education on this disease. I too have pernicious anemia! I have had it for several years un-diagnosed but living with it knowingly for about 7. When I first found out I was mortified, I had never even heard of such a thing however, I was also relieved because now my doctors knew what was going on with me. I have had a spinal tap, 2 blood transfusions, early onsite dementia, spinal stenosis and sciatica, 4 miscarriages, 2 good job losses, and almost my marriage before I was diagnosed. I was ready to completely give up and throw in the towel! Coping, understanding, and dealing with this was harder than anyone could ever imagine! No one understood what I was going through, they all thought I was just being lazy! In my mind, I was as strong as superman but my body and energy level was painting me to look like the older version of "Rose" from the movie "Titanic", at the time I was only 30! Now I am living with the disease and educating myself more and more. Pernicous Anemia is not a death sentence, you can sustain a healthy life and lifestyle as long as you stay on tract. Eat right and Know your highs and lows and what to do with both! Always remember you are not alone... there are so many just like us out there... reach out!
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