I can't seem to find a simple straightforward answer. Is it inevitable that I am just going to get sicker and die? How long will it take? Is there anything at all that I can do?
I have it, my 88 yr old Mom has it. Did your dr tell you if it was hereditary? Ours is. Until 2 yrs ago you couldn't tie her down. She now is on cordorone and has a pacer, but she still has a life. We take her places now, she won't drive, but she still goes shopping if she wants to. There are procedures that can be done now to alter things that they couldn't do with Mom because she felt she was too old. The best thing you can do is keep your bp and pulse down, because like any muscle, the heart will enlarge with exercise. Also make sure you drink allot of water, you don't want to be dehydrated and make your heart work harder. I don't have much in the way of symptoms yet, I know because my Mom was diagnosed and the dr said the kids should be checked. Be sure to see your cardiologist regularly. My Mom wouldn't be alive today if she settled for what her local cardiologist said either, he said he couldn't do any more for her. She went to the closest city for care and found a cardiologist to treat her.
Most people with hypertrophic cardiomyopathy are able to live a full and long life if they receive appropriate treatment. For more details, contact the Cardiomyopathy Association, a charity that provides information and support to families affected by the disease. See www.cardiomyopathy.org
Hello Wassermann , I have just read your message !
I was diagnosed 3yrs ago now and I remember feeling just the same as you !
Please don't worry I am being treated with a tablet called Varapermil !
Strange side effects at the start but soon got used to them !
I'm still very tierd and out of breath if I do too much !
I'm under Professer Sharma at St George's Tooting London and have regular annual check ups .
Hope u feel better soon !
Message me if I can be if help .
Regards Sue x
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