I was told by one Dr. that MTX would stop the disfiguring of my joints and another Dr. said it may just slow it down, am I going to end up in a wheelchair and Im having hair loss now with fatigue ,nausea and still in pain, Im realey scared .
Hello there. It's a big deal to be told you have RA and I certainly felt scared too. Especially when you get straight on the web to read more about the disease. I'm also on Methotrexate and I think that reading about that scared me even more. But I wrote down all my questions and kept talking to different people until I felt I was getting the answers. This group was a life-saver and really helped me to feel more positive about things. You are not alone and thank goodness there are drugs that can help, even if there's no cure yet. My rheumy nurse told me that different people react differently to the drugs available.If you get hair loss or bad nausea with Methx then there are others they can try - this is often one they start you on. Also it can take 12 weeks before it kicks in, I don't know how long you've been taking it for. Your mental state is important, you need to have faith that you're going to feel better. Little tips have really helped me like eating two bananas a day - the potassium helps reduce nausea. Also take the Methx after your evening meal then get an early night so you sleep through the worst of it. You can also inject if the tabs make you very sick - I haven't had to do that but others say it stopped their sickness. Has your doctor given you folic acid? That also helps. I'm sure others in the group will be able to add to these suggestions. For me, the steroids were wonderful as they enabled me to do short walks each day but I'm coming off those now gradually and the swelling has returned. I'm still waiting for the Methx to kickin but have to be confident that it will. It's half the battle. Nobody can tell you what will or won't happen to your body in the future. Sending you a big hug and hoping you'll get the support you need. X
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