LOn term leg pain. Sought medical advice when became too painful. Physio, osteopath and neurologists can't find anything. On lyrica but not really helping much. Help please.
I'm really sorry you are going through this because I, too, have neuropathy.
Did the doctor talk to you about a Plan B if the Lyrica is not effective?
Did you feel any relief from the Lyrica?
1 - What is your usual pain level? 0 = no pain
and 10 = the worst pain in your imagination.
- If you take your Lyrica, what number does it come down to? We are trying to see how effective it is through your response.
- If you had an opportunity to control your pain (not talking about what type of treatment) what would be an acceptable number? I know that 0 would be our response ... Lol. What is a realistic number for you? What number could you live a lifestyle that is as close to "normal " as possible?
Don't hold back. You have to be honest when you talk to your doctor so don't hurt yourself.
Mine is probably a 4. After a four I don't feel like being sociable. After a 6, I can't focus on tv or find anything that will distract me. After 7, I start having other symptoms of stress from the pain. It's when I have to start taking other meds like for gastritis, Imitrex for headaches, etc. at 8, I can't eat or sleep. After 9, I'm rolled up in a fetal position and softly moaning. I'm going into a phase that I can't take care of myself. I cannot take my meds properly. I need someone to sit with me so I know I'm not alone. I don't want to talk, just companionship. I'm getting desperate and know soon that if I needed to make a phone call or anything else that I won't be able to do .
After a nine, I'm feeling hopeless and I start worrying that my body may kill itself. Not my mind ! I don't want to die! In 10 min if the pain dropped, I'd be the happiest person, socializing and laughing. It's what I tell them when they start talking (and attributing) about depression as being the cause. A depressed person wouldn't be thinking that way. I've already called my husband home from work because I was afraid to be alone. I also tell them I'd be crazy NOT to have anxiety and depression with a pain syndrome that is out of control.
I wont allow myself to have a level 10 out of fear. Remember when you are at this high of a level, insomnia and days of sleep deprivation will interfere with your thinking.
I'm not trying to bum you out. I'm trying to tell you from my experience as a nurse who taught pain management but more importantly, a patient with chronic pain.
One of our first classes was about a patient's perception, knowledge of his disease and experiences through his own or a family member.
There are so many factors in determining a patient's need so they have quality of life. There was a phrase that I will never forget because it takes a complex situation and boils it down to really what's important...
"Pain is what the patient says it is".
Hence, the need to discuss how to use the pain number system accurately.
You should take time to write down your list just as I did and give him a copy. He will understand you better and be able to understand your expectations.
As far as your question...
Lyrica may work at a higher dose.
Gabapentin is another drug for nerve pain.
Cymbalta is an antidepressant and for treating of nerve pain. I may get some repercussions on this one because it gets mixed reviews plus withdrawal problems. I had no problems with it and felt slight relief,
Start learning alternative techniques like meditation and others. This also works as good as meds, IMHO.
The doctor will take you more seriously knowing that you are doing everything possible.
If you want help with these, we can all give you suggestions.
- Lyrica Information for Consumers
- Lyrica Information for Healthcare Professionals (includes dosage details)
- Side Effects of Lyrica (detailed)
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