hi I myself suffer from narcolepsy(and i also have all of the added conditions that can go along with)i have always been told it is illegal to drive with this condition??? unless of course the meds taken works that well you do not have any attacks at all,majority of people commenting only have reduced attacks so how do they still hold a driving licence... i'am on dexamfetamine and take 8x5mg a day(this is my natural tolerance) although i only take the 8tabs when iam in college etc i try to manage with less at other times as the max legal amount is 12 tabs a day(my neurologist told me this) 10 mg only lasts me 2-3hrs if i go any longer without i have attacks straight away feels as if my body saves them up!!(the 8 tabs i work them as 10mg,then 5mg,then 10mg etc every couple of hrs) these tabs have suited me the most.i just hope i can keep my tolerance dwn... the driving bit i dnt understand as traveling brings on my attacks be it by car,bus or train just the same as just sitting does.just wondering if maybe there's some tips ppl have while traveling as i would really love to be able to do this with no attacks.I hate taking public transport especially when i have my daughter with me :-(.
I am not sure if it is illegal or not... but I do believe that a doctor treating a person with this condition would be legally, ethically, and morally obligated to keep the patient safe by recommending that person not drive. Most people with this condition, as you know, even with treatment... still have symptoms. Would you want to have a sudden attack while driving and potentially lose your life, your child's life or the lives of others? Taking public transportation may have its drawbacks but I assure you that your doctor, your family and friends don't want anything to happen to you, your child or others you may encounter on the road.
I do not have this condition... I have Addison... most of those symptoms I don't have any more but when I was first diagnosed in the hospital... my doctor told me I couldn't drive. I was falling asleep everywhere I went. I was having very low blood pressure issues so motion would cause me to fall asleep. I get your frustrations... honest, I do. When I had to take "taxis" to get to and from my now weekly doctor visits... I was terrified that I was going to get mugged or assaulted while in the taxi. I would be asleep within moments of getting in the taxi... to the point that I would tell the drivers that I was ill to throw them off. Silly me...
I didn't drive for a year and not until I left my husband. My health got much better without all that stress that kept me physically off balance, too. I know this isn't your situation so I am going to continue a bit with my story to give you a better sense of why you shouldn't drive... it isn't to punish you that things are the way they are... it is to make you stronger in the face of it.
Before I was diagnosed, I was driving distances and I drove off the road more times than I care to remember. Once on my way to work, I passed out and missed my exit and landed up an embankment between two trees. I called 911 and these cops couldn't find me because I was hidden up this embankment but I could see them. I couldn't get out of my vehicle because I was wedged between these trees. I was so scared, dazed and didn't understand what was happening to me... You really don't want those kind of incidents or accidents.
I was driving to my dad's, which was a good hike, and I passed out driving, I crossed several lanes of traffic and then swerved off an exit ramp. Thank the Lord... I didn't hit any body else or anything. I was too far from home to turn back... and too stressed out to drive any more. So, I got some caffeine in me, ate and prayed the rest of the way. A 4 hour drive took me almost 8 hours because I had to then stop and rest about every 45 minutes. I stayed one week and was terrified again to drive back home... such a long drive.
I totalled my car in a head-on collision... that was in 1999. I didn't get diagnosed until 2001. I can drive now..just not long distances but for other reasons. Driving isn't all it is cracked up to be. I am actually afraid when I get in the car... not a good way to feel or be when driving. I was in two other major auto accidents since then that resulted in some major surgeries. Even though they weren't my fault... even my lawyer told me to get a driver. Not funny... not funny at all. So, I will not and do not drive with other people in my vehicle. I avoid personal liabilities like the plague.
Just wanted to give you some other perspectives... so that your own issues don't overwhelm you. Be all you can be... and don't worry about the things you cannot change... there are many avenues in life... keep your options open and you will see you have just as many opportunities as the next person only the road you travel will be different.
Taking public transportation has its advantages. You don't have car insurance or car payments to add to your burdens... that could cost you $550.00 plus per month or more.
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