Have no family history--- am trying to find my birth mother... to no avail, YET. Have had several small seizures and one grand mal one in April of 2013. I am taking 300 mg. of Dilantin each night, for how long, I don't know. No one says if this I a lifetime situation or not. What do you think? ?.
Hi, although not common, you can certainly develop Epilepsy symptoms later in life. It doesn't have to be congenital. It can occur if someone experiences a trauma to the head, or it can develop through the use of medication & other substances. Also, if someone experiences a devastating life event. What does your doctor say?
Hi Pookie and welcome to DC. This would certainly be disconcerting to me if I developed seizures for no apparent reason... regardless of what the MRI results say (nothing).
If you haven't seen a neurologist... that is the direction I would go. If you are experiencing unusually high amounts of stress... take a look at what those triggers might be. When you start medication (and it works) it doesn't always mean it is going to be a life-long sentence. But if it is working, look at it as a supplement. Some people just need more than others...
I wish you well and I hope the cause for this comes in a form that is easily controlled and better understood.
Hi Pookie , im sorry to hear of your tredgedy, i had a grand mal seizure nov 12,2004 before this happened i was very stressed from seeing my mom being in the hospital over 1 month (shes ok now) at the time before this happened i was NOT sleeping enough i was sleeping 1-4 hours only before going to school , i was using the computer too much at the time i also was experimenting with inhalants. before this happened i had noctournal seizures starting from 2003 i did not know what they were i thought they were "hauntings a ghost attacking me" . i took dilantin also for 11 months.
after stoping dilantin oct 2005 i had alot of difficulty sleeping recently i had a seizure febuary 2012 i had been binge drinking often for 18months before this happened ( i dont drink no more) the doctor diagnosed me with anxiety and gave me alprazolam (xanax) i felt alot of relief i dont recommend this drug because its HELL trying to quit i highly recommend you get a EEG test to check your electricity in your brain if you really have epilspy or not. i had 2 before one in nov 2004 and another in april 2012 sorry this is long
hi pookie its me again i wanted to point out some things to you of what has helped me besides dilantin to control seizures. start drinking some chamomille tea this works very well i had some close calls before i had some of this tea it worked really good it helped me relax alot and not have a seizure, also try eating a small piece of coriander this really helps also to prevent seizures (google these they really work !) an aroma therapy such as lavendar oil works great. also try to avoid strong foul odors strong stuff such as fingernail polish remover or hair coloring. lack of sleep & smoking tobacco cigarettes can trigger seizures too. stress can trigger this too if your thinking of your birthmother alot, if you use your computer alot try to make the screen dark i feel i might have a seizure being exposed to lights so i make my screen dark or i wear sunglasses when i use the computer or drive at night bcuz of other car headlights.
i had a few seizures after my grandmal nov 2004 i started taking a sleep supplement called Valerian Root this works VERY well to prevent seizures too i dont know if its safe to mix with dilantin i highly recommend you take this after quitting dilantin to prevent seizures. also a daily dose of vitamin E vitamins & omega 3 fish oil work great to keep your brain healthy & to prevent seizures. Activating helps me alot too I use a treadmill now its helped my mind feel clear. i HIghly recommend that you seek a neurologist and get an EEG test done its not harmfull they just put this beanie looking hat on your head with metal prongs attacked to it that touch your skull and the prongs are attached to a machine ,they put you in a dark room they make these different types of flashing lights the test takes around 30 minutes i dont have health insurance anymore except indigent health so the test costs around $400 to take, im sorry i rambled on too long i really want to help you ok , god bless you
I had my first seizure at the age of 40. I was brushing my 6 yr olds hair before school and just went down! My poor little girl witnessed it! No family hx, no rhyme or reason. When a neurologist looked at MRI she said, "You have a lot of headaches, don't you.?" I do and have for as long as I can remember. So did my father and some of my siblings. The neuro said there are a lot of white spots. She called it demilanation. (sp?). Was put on Dilantin and has worked on seizures. Haven't had any while on it! I am now 53! Just wish I knew where in the &$@; they came from???
- Dilantin Information for Consumers
- Dilantin Information for Healthcare Professionals (includes dosage details)
- Side Effects of Dilantin (detailed)
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