My mom has non small cell lung cancer-extensive metastatic disease w/ soft tissue involvement of the gluteal region, also intra-abdominal adenopathy as well as apparent muscular involvement mediastinal lesion is very active chest wall lesion active. stage iv not resectable not curable. started treatment with alimta 1st treatment 8/6 2014 neulasta on 8/7 she had blood transfusion 8/13. 2nd treatment 8/27 neulasta 8/28. We thought everything was going ok it's 9/8 and starting yesterday shortness of breath that has not gone away. went and had lab work on 9/3 it was borderline but ok and she has been eating good so went and had lab today because of shortness of breath and being tired. she will be getting another transfusion in morning. this evening she had pain upper left side around ribcage area.This is not a spot where there has been pain before. there is pain in other areas that we're aware of and its constant and consistant with tumors.she controls it with medication she was able to relieve the pain on her left side with the same medication. my question is could this be pain from a swollen spline that could rupture should we be alarmed since these are side effects of neulasta. can you tell me a more detailed of what to be alarmed about. this is all new to us thank you
I know from experience what you are talking about. You don't want to ignore a potentially new symptom, yet you don't want to be an alarmist with every little ache and pain. I've had a different cancer since 2004, and I have learned that my oncologist wants to know if I develop any new areas of pain or infections. All it takes is a phone call to your mother's oncologist to inform him/her. If the doc feels it might be something that needs further testing, he/she will order those tests. In the beginning of chemo it is not at all uncommon to form new tumors/lesions. The key is to catch them quickly and attack them. I wish your mother and you the very best outcome with this horrible disease. I, too, am back on chemo, so your mother and I can struggle through this together and celebrate our victories over our cancer. The diagnosis of cancer is not always hopeless. My prayers are with you and your mother.
If you don't have an oxiometer get one from the drug store. It will measure her oxygen levels, and pulse. If her oxygen gap falls below 90 she needs to sit down. If her pulse goes up to 100 or higher walking or even sitting she needs a doctor visit right a way, if she has oxygen below 90 or gasps between words, get her to the doctor that same day, urgent care or the ER. Her condition would be serious and low oxygen causes permanent damage. The investment of that small meter is worth it and will save her comfort and ability to heal. It usually costs under $50.
Stay on top of this possibility. It is not the judgement of your mom. Her thinking can be affected by the fatigue, lower oxygen and pain. Just getting up may be tough. She needs to be her own advocate and support from you can be that until she is stronger.
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