... medicine without a lot of side effects can really help me. I have been on cymbalta,Lyrica and wellbutrin none of these drugs have helped.
I have fibramyalgia which i'm in great pain, and makes me really depressed. What medicine?
Added 5 Aug 2009:
I also have no energy at all. I have heard the new drug savella will help all of these symptons. But don't have a Doctor that has knowledge of this drug. What do I do to have my Doctor gain information about this drug?
Other then the drugs you have tried, what else are you doing to relieve the pain??? Diet and exercise play an important roll in fibromylagia patients.
Opiates don't fair well with fibro patients and a lot of doctors won't prescribe them for fibromylagia.
The Lyrica should have helped as it is a wonder drug for this condition.
My advice to you would be to learn as much as you can about fibromylagia and try the diet ad exercise along with nsaids... Good luck... Dave
I've been on the trial pack of Savella now at max dose for 2 weeks. Honestly, before starting this med for Fibro I could barely walk. Saw my Dr. today for f/u appt. I told him that it has seemed to help so far with 40% of my pain, I was crying all the time and my mood has changed, I'm not so overly sensitive to commercials, just someone mentioning my daughter or a sad situation I would break out crying, hahaha, and of course crying every morning waking in excruciating pain. I've actually been able to do some laundry and dishes after not being able to do anything for a full 4 months, honestly it was terrible. My Dr. said that I would start to notice some changes after the first 2 weeks, but not feel the full effect of the meds until 4 to 6 weeks. So I'm hoping this medication will get me back up and running like my old-self again. There are some side effects that can be very bothersome, but my Dr.
assures me they will go away as soon as my body gets used to the meds. Side effects for me, can differ from person, has been migraines (which I suffered from anyway), nausea (can be tolerated if you take with a snack or a meal), some dizzyness and lightheaded (for me the first week), not much now, only on occasion, insomnia, which I've had since the age of 20, now 43 years, but I take Ambien 10 min. before bed and is safe to take with Savella. I've still been icing my muscles, take 2 ER Tylenol every 6 hrs for pain, but other than that, I've truely been able to start moving around. You cannot take Ibuprophin with Savella as it shows a drug interaction, so for any inflammation, I ice. I've also been using a topical cream for the muscles that have a deep ache, like Freeze It or BioFreeze. Note: I was on Prozac for 7 years, weened myself off because it helped my mood, but no doctor was ever able to figure out my fatigue and muscle pain. I was off of the Prozac for 7 months before I just recently found a doctor in Murrieta, CA that understands this disease.
P.S. No weight gain, as I recently lost 40 pounds before going on Savella. If anything it really helps with the fatigue, but you have to be sure to take it early with breakfast and then 4 to 5 hrs later with an early dinner (especially if you have insomnia, or you won't be able to sleep). Before finding my doctor, I saw a Psychologist mainly because of the fatigue and muslce pain, depression. She put me on a number of diff meds, I was soooo done with it and quit the Prozac. Bye the way, I did gain weight with Prozac, and was also put on Wellbrutin & Cymbalta & Straterra, which was too unbearable to tolerate.
Wishing you wellness. Blessings to you.
"You Never Fail, Until You Fail To Try" :)
I'm sorry to hear you've been in pain for so long. I also have been in a constant flare since about April of this year. I was diagnosed with Fibro back in about 2000... though I've had it pretty much my whole life I think.
I HEAR YOU. It is indeed very difficult to fight for advocacy and understanding with Fibromyalgia. I fought long and hard to get SSI/SSDI since I am unable to work. Try your county and get a caseworker to walk you through the process if you need this helpful income. You should also look at the following books: Fibromyalgia & Chronic Myofacial Pain: A Survival Manual and also The Fibromyalgia Adovcate by Devin J. Starlanyl- these books are validating of your frustration and have much advice and information that may help you. (information on metabolism, diet, pain management, possible underlying medical factors, how to talk to your doctor/find an effective doctor, and so much more!!!
I purchased a Theracane (just type it in and you'll get some places to purchase it from- it's about $40) to help me reach and release trigger points- which has helped immensely. I discovered that I also have chronic myofacial pain- which can be helped and decreased if you release trigger points. I didn't know I had it until I read Devin's book! I also realized that I may have had unnecessary root canal since it was most likely a trigger point in my jaw since the dentist didn't see inflammation, but we did it anyway since we didn't know it could've been a trigger point!!
Another idea is to eliminate aluminum from your life... it's in antacids, shampoo, etc. (also in saline solution drip if you end up in hospital). It's a trigger for many Fibromyalgia sufferers. I am also sensitive to flouride- which is in most drinking water- I started buying filtered water (reverse osmosis is only kind that removes this chemical- call and find out before you buy). I am also allergic to nickel.. which I thought nothing of until I found out my sensitivity to aluminum (they are both heavy metals). I am trying to convince my doctor/find a doctor who will test me for heavy metal toxicity and also for fluoride toxicity (I've recently discovered my teeth problems may be result of such toxicity).
Do research. Arm yourself with education and knowledge and NEVER EVER give up. You will find what works eventually... you must. (I'm not there myself, but I've at least improved things a tiny bit and feeling like I've learned a few things helps my esteem and hope levels.)
I guess it is like the saying, Sometimes you have to kiss a lot of frogs before you find a prince. I too have tried multiple meds and had a good response to Effexor XR but Medicaid stopped covering it at the time and through me into a major depression being taken off of it. Finally I have been put on Cymbalta and have only had it a few days and have lots of relief and if it takes 4-6 weeks I may feel truly like a producyive person again. Hang in there and I sure hope it keeps getting better for you.
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