Some days I dont do anything except sit on my couch constantly turning every few minutes to find that sweet spot where it hurts less. I know I could be taking stronger meds and have used some fentanyl patch for awhile but the Pain Dr I am with now is an ijection specialist and I can't stand needles. I feel slightly better in one leg but that is wearing off after 40 days of that where is my leg feeling. Less pain but that dead leg feeling I was walking slowly now for therapy. I get angry when people in there golden years just go right by me and Im middle aged yea I know that I should be thinking how I hope I can be that way but not verybody can be... Maybe when a horse breaks a leg why make hjim sufferr. Durn Ill hunt for another sweet spot but my best bet for that may just be some chocalate... B
Can perhaps your situation, i sometimes just lie back and flick the channels of the idiot box, toss & turn trying to analyze what went wrong & where, cannot find answers to the questions, I guess time instead of meds is a big healer, one needs patience more than meds or consolations, I am sure you will ride over, I to hope for the best, best of luck & stay well!
I feel every word you have said. So many things are rushing through my mind.
You need somehow to get out of the house. If not, the pain and depression gets worse.If you have a YMCA near by get into the pool and wal and do what you want in the pool. This is you time, time to excercise and it does not hurt and time to think. This helps my back so much. I do not swim, so I walk and just splash in the water.
I have no help with the patch, too many drugs lead to addiction. It is a vicious circle. The light pool excercise is the best I have found to control my pain.
I hope this helps. Please keep us abreast on your situation.
I feel for you! Pain can be such a prison. I have to second what itsmetoo said- if you can get to a Y pool- discovering the water aerobics has saved my life. I can actually work out for the first time in years, and though life on land is still very challenging and I too spend a lot of time on the bed doing my editing work and hurting the water has added quality to my life.
Hugs to you!
hi bnagoh, I just read your post tonight, and like so many others here, i feel your pain and depression. The others are so right about the pool. If it is available to you, definitely try that. I have no pool to go to myself. I wish I did. The depression that this kind of life leaves you with is a hard one to conquer, isn't it? It's almost as crippling as the pain. It leaves you with no desire to do anything, which is depressive by itself. I spend a lot of time on my computer. I read every bit of news I can find (sometimes more depressive than not), and as I read, I find words that I don't know , or don't remember the meaning of. I write them down and when I can take no more news, I google search them for the answers. I don't know if this will ever come to good use, but I like to think that if the President called me to come for lunch, that I could keep up to him. I'm sorry, I know this is not funny, I really do.
There is something though, in learning something. It bandages a spot inside; the one that says you are useless. And this site is a wonderful place to come to when you're feeling bad. The people here do understand. We might not always be able to help, but we will always listen. As long as you come here, you will never be alone. You can make good friends here, and that is a tremendous help, believe me. I have gotten more out of this site in 7 months than I have in a lifetime. And when I'm feeling down, and useless, there is always someone here to remind me that i'm not. I have people older than me walk by me, as though I'm the old one, not them, and it is so very hard to take. I just try to remember to thank the Lord for what I do have. That is not always an easy thing to do, I know, but just try. It might bring you a little peace. Try the pool, if you can, and the computer, and games, solitaire, on and off the computer. There are a great many games, all kinds, on the computer, and a lot of learning from playing games. You can go to games to learn, games to compete, and games for fun, and you can find free ones everywhere. It's a time passer, that's for sure, and just a suggestion. If there is any way for you to get out at all, do that. Even just a short outing, with a friend or family member; a walk to the corner, or a ride to an ice cream shop. Do you read at all? Like cards? Do you have anyone to spend time with you while you sit/lay on the sofa? Being alone makes it harder. It gives you too much time to think. If there's anyone who can just talk to you, tap into that. And keep coming back here. This is a wonderful support system, and there is always someone to talk to. I will make you my friend, and then I will get notice when you have posted a question or comment. Do that with anyone who answers your question. That way, more than one person will know you are "calling". And join one or more of the support groups here, ones that you will fit into (pain, etc) That taps you into quite a few people who know and understand and can also give advice as to what to do to get feeling better. I don't like to advocate drugs, but an anti depressant might be in order and if you're already on one, it sounds as though you might need a change, or the dosage upped. Medication does have it's place. Yes, it can cause problems, so you need to weigh your options and see which might be the way to go. Write all the pros and cons down on paper, and then see how you feel. That might help you a bit. I'm sorry I can't say more. This is something I fight every day. I can only get out to doctors and not much more. I have missed birthdays and weddings Christmas'a and so forth. I do know what you mean, but you are not "put out to pasture." You are Gods child, and as such, there is a place and a purpose for you. You just have to keep looking for it. Let us help, ok? take care and God bless. I hope we hear from you again. beanmarie
I totally understand & feel for you. I'm 45 & have had issues with joint & muscle issues, sleep problems, ADHD, anxiety, & depression I know of since the age of 14 & probably before this but I started getting testing for theses problems at age 14 but Fibromyalgia wasn't known of I suppose then.
I've since been diagnosed with Fibromyalgia, Degenerative Disc Disease, Depression,Hypothyroidism, Polycystic Ovary Disease, Raynaud's Disease, Anemia, ADHD, Narcolepsy, Insomnia, Weakness of my whole right side of my body, Massive Multiple Muscle Spasms at once, & I also have had my C5-C7 replaced about 3 yrs ago, I had Cardiac Ablation to stop Suara Ventricular Tachycardia, I've had several veins tied that were to correct Varicose Veins in my Female Organs while having exploratory surgery to see what was causing my excruciating pain in my female area & extremely painful & heavy periods, as well as the removal of 2 Fibroid Tumors at the age of 27, in 2009I had Gastric Bypass surgery with permanent band, which took care of my weight & Diabetes but after 2 yrs left in more pain & worse health than I was in before. Anyway I battle almost daily to just do the basic things in life & although I do have a few good days every few months I dream of getting my old life back.I've tried almost every drug available for Fibromyalgia, Insomnia, Narcolepsy, Spasms, & Depression. Most have little to no effect. The best thing I've ever taken for Depression is Fish Oil, it took almost a month to get full effect but is by far the best & several other friends with Fibromyalgia & or Depression agree with me on this so it may help others that why I'm telling all. I changed Insurance companies & I'm having trouble finding a new Psych or Dr that will put me back on 10mg of Ambien as no other Meds help me as well as the Concerta needed for my ADHD & Narcolepsy .I also get Trigger Point injections & Bilateral Cervical Brachial Epidurals every 2 months that I've gotten for almost 3 yrs in order to get my 10 mg Oxycodone & my Insurance only covers 40% of it leaving me around a $3000.00 balance in which I can't afford but Thank God for Med Access One, a credit card for medical bills that as long as I pay $25 a month there is no interest or I couldn't get them. But I refused Narcotics for almost 10 yrs but I have been on the same dose & that is the highest dose they'll give & it helps but is much less effective as it used to be yet they offer me no other solutions so I'm back getting testing with my Orthopedist because the Neurosurgeon said I'd need more surgery later when he replaced my C5-C7 but he didn't elaborate when my family & I asked. Now my coccx has rotated causing getting comfortable almost impossible.I do get some relief from my TENs Unit, Heating pad, & right after Physical Therapy does a deep tissue massage. I pray that you find help & relief soon.
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