which she directly inherited from me. She has the same type, more adhesions then blisters or spots. She is in horrible pain every day with the exception of one week per month. She is on Seasonique or the generic equivalent and it is not working well enough. Her OBGYN wants her to either try Depro or Lupron and I know when I was first diagnosed, those drugs where first coming out and with a lot of bad side effects. Could someone tell me if one is better than the other and what their worst side effects where? I would greatly appreciate it. Also if someone has adhesions over blisters and if the blisters are less painful overall. Thanks!
Hormone contraception therapy: Oral contraceptives reduce the menstrual pain associated with endometriosis. They may function by reducing or eliminating menstrual flow and providing estrogen support. Typically, it is a long-term approach. Recently Seasonale was FDA approved to reduce periods to 4 per year. Other OCPs have however been used like this off label for years. Continuous hormonal contraception consists of the use of combined oral contraceptive pills without the use of placebo pills, or the use of NuvaRing or the contraceptive patch without the break week. This eliminates monthly bleeding episodes. They all have side effects it's just a give and a take, also pain is perceived different by all so it would be hard to say.
I am sorry to hear your daughter is suffering,I am in the same situation myself.
I am only getting one week free a month,the rest is hell with pain,I have been on the depo injection and for me personally it did'nt suit,I had bad side effects and had spotting and long periods of heavy bleeding for long periods of time-along with unreal pain. I also had the laparascopy but with no positive results,I was put on hormone injections,that put me into false menopause,but it was the worst 12weeks of my life,I thought i was having a nervous breakdown! I cant comment on lupron as i did'nt want to go for more hormones after going through what i did with the decapapeptyl injection. Then again that was my case,not everyone reacts to meds or injections the same way,but I just wanted to offer my advice and share my story with you. I feel so much for your daughter,I know exactly what she is going through and how the pain can drag you down and make you feel,it's an awful life to lead!!
If you need to talk more about this friend me and we can chat privately!
May i ask what age your daughter is?
Hi, I too suffered from Endometriosis for many years with such pain it would double me over, and cause me bleeding that was really heavy. I had many surgeries which always found adhesions and also they would comment about a thick band, after the surgeries I would be fine for a short while. I let this go on for many years until the new device Marina came out and this made a big difference and would recommend it in a heart beat, I know we are all different and react differently to drugs but it is worth a try if all else has failed. Mine was put in by my specialist and it was little to no pain having it put in, I did have a bit of spotting a few times but when you have had heavy bleeding for so long a bit of spotting here and there is no big deal. I had my device in for the whole five years and at the time I wanted to try and have a child, it took me till the 3 month to get pregnant.
I was told getting pregnant was very slim for people with Endometriosis but I guess I was the lucky one to have a child, I also ended up having a hysterectomy after and it was also the best thing that happened to me because I was finally rid of those heavy periods and intense pain from them. I just wanted to offer my story and hope you could get something from this, take care and I really hope things change real soon for your daughter. Liz.
- Seasonique Information for Consumers
- Seasonique Information for Healthcare Professionals (includes dosage details)
- Side Effects of Seasonique (detailed)
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