I am wondering if I am in the right place to have them answered. She is having trouble eating. She eats very little bits and says she feels full, and she doesnt drink enough either. Is this common with this problem?
People who suffer from autonomic neuropathy have a feeling of fullness, so they don't eat much.
If you want to learn more about her diagnoses, google What is Autonomic Neuropathy, go to the Mayo Clinic website, as it is easily understood by we non-professionals.
We have a few members here that are nurses, and darn smart ones at that!
I'm hoping they can answer you and give you more information, yet there is a lot of info on the web, if you search it properly,
I wish you and your daughter all the best,
Don't know much about it Lara, but I'll do what I can. Does she know what has caused this? Sometimes the treatment depends on the cause. What kind of dr takes care of her? It is common with this, for her to feel full all the time. Its because the neuropathy has effected the nerves that go to her stomach and that in turn slows down the stomach, causing gastroparesis. We have a few here with that. They may be able to help you out with management. She should probably have food available all the time so that she can nibble throughout the day. The same thing with fluids. I have a very dry mouth, so I keep a bottle of water with me at all times, and she could do that too. She may also have trouble with either constipation or diarrhea because of it.
My daughter is seeing a neurology team near where we live. She had lower back surgery a little bit over a year ago to have two bulged discs removed. Not sure if thats the cause of it or not. She has been having problems with hypotension. Her neurologist is wanting to treat her with a medication called mestinon starting in april. She also has to wear compression socks. They want to test her cortisol levels because the dr said that if it comes back thats off, then that could be another cause of this happening to her. There is just so much involved and so little answers to why its happening or what is going to come out next to have to deal with. Thank you so much for your advice.
What are the chances of my daughter being able to feel normal again and have the symptoms disappear? I am convinced that its been caused from her back, but her orthopedic surgeon said that it isnt from her surgery. Her neurologist says she isnt sure. Something has caused this, and I just want my baby back to normal again. Will she be able to go back to school and handle the stress of everyday life again? We are really so new to this. Thank you for any advice
Ive talked to her neurologist about it. She has told me that she is going to be treating her symptoms and that she doesnt know the answers. This is new to her, and she is having to reach out to other drs for some of the answers. She is in an unfortunate situation where she doesnt know as much about this type of neuropathy. Thank you for your help anyways.
If she is having difficulty with eating I would recommend going to see a gastrointestinal Dr. See about having a gastric emptying study performed to check for gastroparesis. I've been diagnosed with it and the medicine I was put on, along with changing my diet, has helped. I am taking Domperidone, which is not sold in the USA, I have to order it from Canada, and it seems to really be helping me. Eating 6-8 small meals a day rather then 2-3 normal meals a day allows the stomach to empty a little easier resulting in not feeling so full or sick. Doing things like eating chicken rather than beef, no raw veggies, trying to eat as little fat and fiber as possible (since these things are hard to digest) has helped quite a bit. I actually saw a nutritionist to learn how to change my whole diet. My gastroparesis is severe and has resulted in many hospitalizations.
Last June my gi Dr tried a botox treatment, where they injected botox into the flap at the bottom of my stomach to allow food to pass thru easier. Although this is a temporary treatment the relief I have been giving is unbelievable. I hope you may find out what is wrong and a treatment that helps her to be able to feel better
Hi katsmom, I have Autonomic Neuropathy - when I saw your post about "feeling full after a few bites" I had to add my 2 cents. I experienced the same thing, I would take a few bites of food and stop because I felt full. Could not force myself to eat. I was hospitalized, as soon as I was given pain medication my appetite returned. Is your daughter's pain under control? It could be something as simple as the fact she is in pain and her body is sending the signal to her brain that she is full. I hope that is her problem. Please update us on her condition, take care.
My daughter's condition is improving somewhat. Her appetite goes and comes and she has lost almost 20 pounds since February. Her doctors put her on mestinon which helped. They have also found that she has a loose spine. She is wearing a special back brace now and will be undergoing spinal decompression and fusion surgery in a week. Her legs change colors still when she has been up for too long of a period of time, and she tires quickly. She, however, has been able to stop using the walker which has been good. The doctors have warned us that while the surgery will help stabilize her spine, it may not correct any of the other problems that she is having. Still waiting to hear back from some of her other testing. Thank you for your interest.
Katsmom, I'm so sorry your young daughter is dealing with such misery. Having just been dxed but knowing nothing, I don't know how to help. I wish I could. I'm 64 and have the same digestive problems. Since I started with the intestinal issues several months ago, I also have a feeling of fullness, nausea, and have lost weight... but my tummy feels bloated? I pray she is better now? Strange, I was told to have more fiber and probiotics? I also had surgery... only in my neck? Is it possible nerves get damaged when back surgeries are performed sometimes? I realize my post is over a year since yours, but I still want to wish her well (you too). AN is a mystery to me.
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