... is in the beginning stages of it. The dr. treating her acts like he don't know how to treat her. He's treating her with antifungal creams. Even I know that's not right. What do we do??
Get another doctor! I was in the same boat about 2 years ago. My first dermatologist just shrugged her shoulders! I ended up at Johns Hopkins, and the doctor there told me that PUVA treatment (phototherapy) may help and she recommended a doctor closer to my home whom I've been with ever since ( I live in southern Maryland). Anyway, I was first diagnosed with an extreme case of eczema, but a biopsy said that it look like it may be CTCL. About a year later, another biopsy was done, and it showed that I had full blown CTCL. After the first biopsy, the doctor started me on PUVA treatments, which I've been doing twice a week for over a year, combined with a topical corticosteroid. And for the last two months, I've been taking Targretin capsules. The targretin went to work on me right away, but the PUVA treaments have been a blessing! I went from looking like a troll (my own words) to looking normal and feeling almost normal. PUVA is expensive (mine is covered by insurance), and you will have to dedicate yourself to traveling to your doctor at least twice a week for an extended period of time, but it is so worth it.
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